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Databases for assessing the outcomes of the treatment of patients with congenital and paediatric cardiac disease – the perspective of anaesthesia

Part of: The International Society for Nomenclature of Paediatric and Congenital Heart Disease (ISNPCHD)

Published online by Cambridge University Press:  01 December 2008

David F. Vener ,
Jeffrey P. Jacobs ,
Ehrenfried Schindler ,
Bohdan Maruszewski  and
Dean Andropoulos
David F. Vener*
Affiliation:
Department of Pediatric Anesthesia, Texas Children’s Hospital, Baylor College of Medicine, Houston, Texas, United States of America
Jeffrey P. Jacobs
Affiliation:
The Congenital Heart Institute of Florida (CHIF), Division of Thoracic and Cardiovascular Surgery, All Children’s Hospital and Children’s Hospital of Tampa, University of South Florida College of Medicine, Cardiac Surgical Associates (CSA), Saint Petersburg and Tampa, Florida, United States of America
Ehrenfried Schindler
Affiliation:
Department of Pediatric Anesthesilogy, Asklepios Klinik, Sankt Augustin, Germany
Bohdan Maruszewski
Affiliation:
The Children’s Memorial Health Institute, Department of Cardiothoracic Surgery, Warsaw, Poland
Dean Andropoulos
Affiliation:
Department of Pediatric Anesthesia, Texas Children’s Hospital, Baylor College of Medicine, Houston, Texas, United States of America
*
Correspondence to: David F. Vener, M.D., Associate Professor, Department of Pediatric Anesthesia, Pediatric Cardiac Anesthesia, Texas Children’s Hospital, 6621 Fannin/WT17417B, Houston, Texas, 77030, United States of America. Tel: (832) 826-1711; Fax: (832) 825-1903; E-mail: dfvener@texaschildrens.org
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Abstract

The Congenital Cardiac Anesthesia Society was formed in 2005 by representatives from many of the busiest congenital cardiac surgical programs in North America and is now in the process of partnering with The Society of Thoracic Surgeons to create a joint congenital cardiac surgery and congenital cardiac anaesthesia database. Even the busiest of congenital cardiac programs have a low frequency of anaesthesia-related cardiac complications and deaths. One of the only mechanisms for accurately determining the incidence and outcomes of low frequency events is to aggregate large amounts of data from multiple sources. To that end, the Congenital Cardiac Anesthesia Society has joined with the Society of Thoracic Surgeons Congenital Database Task Force to incorporate anaesthesia-specific data points into their surgical registry, which is now the largest single reporting site for children and adults undergoing surgical repair of congenital cardiac malformations in North America. The Joint Congenital Cardiac Anesthesia Society – Society of Thoracic Surgeons Database will therefore become an optional module of The Society of Thoracic Surgeons Congenital Heart Surgery Database. Initial data fields have been selected and are presented in this article.

Efforts are ongoing to make this initiative a global project. Initial collaborative discussions have taken place about the possibility of linking this initiative with the European Association of Cardiothoracic Anesthesiologists. It is certainly possible and desirable that the planned anaesthesia module of The Society of Thoracic Surgeons Congenital Heart Database has an identical module in the congenital heart database of The European Association for Cardio-Thoracic Surgery and The European Congenital Heart Surgeons Association. This project should also ideally spread beyond North America and Europe. Efforts to involve Africa, Asia, Australia, and South America are necessary and already underway. The creation of a joint cardiac surgery and anaesthesia database is another step towards the ultimate goal of creating a database for congenital heart disease that spans both geographical and subspecialty boundaries.

Keywords

Congenital heart diseasequality improvementpatient safetycomplicationssurgical outcomesregistrycardiacanaesthesiacongenitalpediatricdatabase
Type
Original Article
Information
Cardiology in the Young , Volume 18 , Issue S2: Databases and the assessment of complications associated with the treatment of patients with congenital cardiac disease , December 2008 , pp. 124 - 129
Copyright
Copyright © Cambridge University Press 2008

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