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A first qualitative snapshot: cardiac surgery and recovery in 10 children in the Red Cross War Memorial Children’s Hospital, Cape Town, South Africa (2011–2016)

Published online by Cambridge University Press:  23 November 2017

Lauraine Vivian ,
George Comitis ,
Claudia Naidu ,
Cynthia Hunter  and
John Lawrenson
Lauraine Vivian*
Affiliation:
School of Child and Adolescent Health, Health Sciences Faculty, University of Cape Town, Cape Town, South Africa
George Comitis
Affiliation:
School of Child and Adolescent Health, Health Sciences Faculty, University of Cape Town, Cape Town, South Africa
Claudia Naidu
Affiliation:
Primary Health Care Directorate, Health Sciences Faculty, University of Cape Town, Cape Town, South Africa
Cynthia Hunter
Affiliation:
Faculty of Medicine, University of Sydney, Camperdown, Australia
John Lawrenson
Affiliation:
Department of Paediatrics and Child Health, Stellenbosch University, Cape Town, South Africa
*
Correspondence to: L. Vivian, Cardiology Department and Paediatric Intensive Care Unit, School of Child and Adolescent Health, Faculty of Health Sciences, University of Cape Town, Red Cross War Memorial Children’s Hospital, Rondebosch, Cape Town, South Africa. Tel: +27 21 658 5369; Fax: +27 21 689 1287; E-mail: laurainev9@gmail.com
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Abstract

This article describes our qualitative research on the follow-up of 10 children, 5 years into recovery after cardiac surgery. The research was driven by a multi-disciplinary team of medical anthropologists, cardiologists, and an intensive care specialist and was based at the Red Cross War Memorial Children’s Hospital where they underwent surgeries. The research sought to answer two questions; first, could we successfully maintain contact with and follow up the children; the second – which will be answered in future papers – asked what life was like for them and their families during surgery and later recovery. The results are presented as a discussion on the themes that arose in our engagement and analysis and not as clinical evidence. These showed that elective surgery although significantly delayed was successful, and all children were followed up at their medical appointments. The researchers, however, were unable to establish follow-up with all families over the duration of the study. In the final round of interviews in the respondents’ homes, of 10 children, we remained in contact with seven. The discussion argues that effective communication and access to these children was often compromised by their coming from the poorer communities in the Cape Town metropolitan region, making them even more vulnerable during their recovery periods.

Keywords

Qualitativeparticipatory action researchanthropology
Type
Original Articles
Information
Cardiology in the Young , Volume 28 , Issue 2 , February 2018 , pp. 322 - 328
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Copyright
© Cambridge University Press 2017 

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References

1. Kleinman, A, Benson, P. Anthropology in the clinic: the problem of cultural competency and how to fix it. PLoS Med 2006; 3: e294.Google Scholar
2. Baum, F, MacDougall, C, Smith, D. Participatory action research. J Epidemiol Community Health 2006; 60: 854–857.Google Scholar
3. Larrazabal, LA, Jenkins, KJ, Gauvreau, K, et al. Improvement in congenital heart surgery in a developing country: the Guatemalan experience. Circulation 2007; 116: 1882–1887.Google Scholar
4. Yacoub, MH. Establishing pediatric cardiovascular services in the developing world. A wake-up call. Circulation 2007; 116: 1876–1878.CrossRefGoogle ScholarPubMed
5. Zarocostas, J. Cutting child mortality by half by 2015 is “still possible,” says UNICEF. BMJ 2008; 336: 175.Google Scholar
6. Blue, GM, Kirk, EP, Sholler, GF, Harvey, RP, Winlaw, DS. Congenital heart disease: current knowledge about causes and inheritance. Med J Aust 2012; 197: 155–159.Google Scholar
7. Mocumbi, AO. The challenges of cardiac surgery for African children. Afr Cardiovasc J Afr 2012; 23: 3–165.Google Scholar
8. Hoosen, EGM, Cilliers, AM, Hugo-Hamman, CT, et al. Paediatric cardiac services in South Africa. S Afr Med J 2011; 101: 106–107.Google Scholar
9. Reid, AE, Hendricks, MK, Groenewald, P, Bradshaw, D. Where do children die and what are the causes? Under-5 deaths in the Metro West geographical service area of the Western Cape, South Africa, 2011. S Afr Med J 2016; 106: 51.CrossRefGoogle ScholarPubMed
10. City of Cape Town. Socio-economic profile 2016: https://www.westerncape.gov.za/assets/departments/treasury/Documents/Socio-economic-profiles/2016/City-of-Cape-Town/city_of_cape_town_2016_socio-economic_profile_sep-lg.pdf.Google Scholar
11. Kasparian, NA, Winlaw, D, Sholler, GF. Congenital heart health: how psychological care can make a difference. An integrated approach incorporating both physical and mental health is critical to “congenital heart health”. Med J Aust 2016; 205: 104–106.Google Scholar