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Long-term psychological distress, and styles of coping, in parents of children and adolescents who underwent invasive treatment for congenital cardiac disease

Published online by Cambridge University Press:  22 October 2007

Alinda W. Spijkerboer ,
Willem A. Helbing ,
Ad J.J.C. Bogers ,
Ron T. Van Domburg ,
Frank C. Verhulst  and
Elisabeth M.W.J. Utens
Alinda W. Spijkerboer
Affiliation:
Departments of Child and Adolescent Psychiatry, Erasmus Medical Centre, Rotterdam, The Netherlands Paediatric Cardiology, Erasmus Medical Centre, Rotterdam, The Netherlands
Willem A. Helbing
Affiliation:
Paediatric Cardiology, Erasmus Medical Centre, Rotterdam, The Netherlands
Ad J.J.C. Bogers
Affiliation:
Cardiothoracic Surgery and, Erasmus Medical Centre, Rotterdam, The Netherlands
Ron T. Van Domburg
Affiliation:
Cardiology, Erasmus Medical Centre, Rotterdam, The Netherlands
Frank C. Verhulst
Affiliation:
Departments of Child and Adolescent Psychiatry, Erasmus Medical Centre, Rotterdam, The Netherlands
Elisabeth M.W.J. Utens*
Affiliation:
Departments of Child and Adolescent Psychiatry, Erasmus Medical Centre, Rotterdam, The Netherlands
*
Correspondence to: Elisabeth Utens, Erasmus MC – Sophia Children’s Hospital, Department of Chid & Adolescent Psychiatry, P.O. Box 2060, 3000 CB Rotterdam, The Netherlands. Tel: +31 10 463 6671; Fax: +31 10 463 6803; E-mail: e.utens@erasmusmc.nl
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Abstract

Objective

To assess the level of psychological distress and styles of coping in both mothers and fathers of children who underwent invasive treatment for congenital cardiac disease at least 7 years and 6 months ago.

Methods

The General Health Questionnaire and the Utrecht Coping List were completed by parents of children with 4 different cardiac diagnoses.

Results

Overall, in comparison with reference groups, parents of children treated for congenital heart disease showed lower levels of distress, manifested as lower levels of somatic symptoms, anxiety and sleeplessness and serious depression. Mothers of children with congenital heart disease reported significantly more somatic symptoms than fathers.

Further, compared to reference groups more favourable outcomes on coping were found; parents in our sample showed a weaker tendency to use styles of coping such as reassuring thoughts and less often expressed negative emotions (anger, annoyance). Mothers in our sample appeared to seek social support more often compared to fathers.

Conclusion

Overall, lower levels of psychological distress and few differences in styles of coping compared to reference groups were found in parents of children treated for congenital heart disease. We need to remain alert however, for individual parents at risk of adjusting poorly.

Keywords

Congenital cardiac malformationsparental distresspsychology
Type
Original Article
Information
Cardiology in the Young , Volume 17 , Issue 6 , December 2007 , pp. 638 - 645
Copyright
Copyright © Cambridge University Press 2007

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References

1. Bhat, HA, Sahn, DJ. Congenital heart disease never goes away, even when it has been “treated”: the adult with congenital heart disease. Curr Opin Pediatr 2004; 16: 500–507.Google Scholar
2. Goldberg, S, Morris, P, Simmons, RJ, Fowler, RS, Levison, H. Chronic illness in infancy and parenting stress: a comparison of three groups of parents. J Pediatr Psychol 1990; 15: 347–358.Google Scholar
3. Utens, EM, Versluis-Den Bieman, HJ, Witsenburg, M, Bogers, AJ, Hess, J, Verhulst, FC. Does age at the time of elective cardiac surgery or catheter intervention in children influence the longitudinal development of psychological distress and styles of coping of parents? Cardiol Young 2002; 12: 524–530.Google Scholar
4. Wray, J, Sensky, T. Psychological functioning in parents of children undergoing elective cardiac surgery. Cardiol Young 2004; 14: 131–139.Google Scholar
5. Svavarsdottir, EK, McCubbin, M. Parenthood transition for parents of an infant diagnosed with a congenital heart condition. J Pediatr Nurs 1996; 11: 207–216.Google Scholar
6. Goldberg, S, Washington, J, Morris, P, Fischer-Fay, A, Simmons, RJ. Early diagnosed chronic illness and mother-child relationships in the first two years. Can J Psychiatry 1990; 35: 726–733.Google Scholar
7. Goldberg, S, Simmons, RJ, Newman, J, Campbell, K, Fowler, RS. Congenital heart disease, parental stress, and infant-mother relationships. J Pediatr 1991; 119: 661–666.CrossRefGoogle ScholarPubMed
8. Lobo, ML. Parent-infant interaction during feeding when the infant has congenital heart disease. J Pediatr Nurs 1992; 7: 97–105.Google ScholarPubMed
9. Koeter, MWJ, Ormel, J. General Health Questionnaire. Dutch version. Manual. Swets & Zeitlinger, Lisse, 1992.Google Scholar
10. Schreurs, PJG, Willege van de, G, Brosschot, JF, Tellegen, B, Graus, GMH. De Utrechtse Coping Lijst: UCL, omgaan met problemen en gebeurtenissen, herziene handleiding 1993. Swets & Zeitlinger, Lisse, 1993.Google Scholar
11. Netherlands Central Bureau of Statistics. Standaard Beroepenclassificatie 1992 [Standard Classification of Occupations 1992]. Netherlands Central Bureau of Statistics, Voorburg/Heerlen, 1993.Google Scholar
12. Garson, A, Scott Benson, R, Ivler, L, Patton, C. Parental reactions to children with congenital heart disease. Child Psychiatry Hum Dev 1978; 9: 86–94.Google Scholar
13. Davis, CC, Brown, RT, Bakeman, R, Campbell, R. Psychological adaptation and adjustment of mothers of children with congenital heart disease: stress, coping, and family functioning. J Pediatr Psychol 1998; 23: 219–228.Google Scholar
14. Morelius, E, Lundh, U, Nelson, N. Parental stress in relation to the severity of congenital heart disease in the offspring. Pediatr Nurs 2002; 28: 28–32.Google Scholar
15. Utens, EM, Versluis-Den Bieman, HJ, Verhulst, FC, Witsenburg, M, Bogers, AJ, Hess, J. Psychological distress and styles of coping in parents of children awaiting elective cardiac surgery. Cardiol Young 2000; 10: 239–244.Google Scholar
16. Lawoko, S, Soares, JJF. Distress and hopelessness among parents of children with congenital heart disease, parents of children with other diseases, and parents of healthy children. J Psychosom Res 2002; 52: 193–208.Google Scholar
17. Van Horn, M, DeMaso, DR, Gonzalez-Heydrich, J, Dahlmeier Erickson, J. Illness-related concerns of mothers of children with congenital heart disease. J Am Acad Child Adolesc Psychiatry 2001; 40: 847–854.Google Scholar
18. Sparacino, PS, Tong, EM, Messias, DK, Foote, D, Chesla, CA, Gilliss, CL. The dilemmas of parents of adolescents and young adults with congenital heart disease. Heart Lung 1997; 26: 187–195.CrossRefGoogle Scholar
19. Tong, EM, Kools, S. Health care transitions for adolescents with congenital heart disease: patient and family perspectives. Nurs Clin N Am 2004; 39: 727–740.Google Scholar
20. Fernandes, SM, Landzberg, MJ. Transitioning the young adult with congenital heart disease for life-long medical care. Pediatr Clin N Am 2004; 51: 1739–1748.CrossRefGoogle Scholar
21. Gudmundsdottir, M, Gilliss, CL, Sparacino, PS, et al. . Congenital heart defects and parent-adolescent coping. Fam Syst & Health 1996; 14: 245–255.Google Scholar