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This chapter documents our experiences of pivoting research on sexual and gender minority youth towards an online protocol using digital methods. Digital diaries presented an opportunity to conduct virtual longitudinal qualitative research on how youth describe their experiences of living through the COVID-19 pandemic in Vancouver, Canada. Our digital diary process, supplemented with remote interviews, allowed us to capture shifting health-related patterns and trends, establish capacity to identify and explore unanticipated areas of inquiry, and evaluate participants’ impressions of the method itself. While going digital allowed us to overcome some immediate constraints to participation, it also introduced new uncertainties, including equity concerns and issues around consistent, secure and safe digital access for research participants. We describe how features of young people’s lives remain important factors associated with their ability to participate in digital and remote research. We offer solutions to the challenges and conclude that to counteract the inequities arising from the shift to digital methods, we need flexible, adaptive and population-tailored digital and remote approaches to data collection.
Understanding how to improve the physical and cognitive accessibility of visitor economy businesses and organisations wanting to offer nature-based outdoor pursuits for people with dementia is key to supporting their inclusion and agency. The aim of this qualitative study was to understand the experiences, needs and preferences of people with dementia participating in nature-based outdoor pursuits in their leisure time. Semi-structured interviews were conducted with 15 people with dementia and 15 family members and subjected to thematic analysis. Four themes related to inclusion for people with dementia and their family members reflected diversity in individual needs and preferences for engaging with nature-based outdoor pursuits, their own adaptations to maintain access including accommodating risk, how cognitive and physical accessibility can be supported by businesses, and which practical and psychosocial barriers prevent inclusion. Learning from people with dementia and their family members has helped bridge the gap to their inclusion in nature-based outdoor pursuits. Their insights will inform the development of such pursuits by businesses and organisations as well as future work into risk decision-making.
‘Relaxed’ events are now common across the public Arts and Heritage sectors. Although designed with the needs of autistic children and their families in mind, they suit people with a range of access needs. Our project at The Open University asked: what would a ‘relaxed tutorial’ look like, and who might benefit from it? Across two years (2021–2023), tutors in the Department of Classical Studies at The Open University trialled a set of autism-friendly accessibility adjustments to live online tutorials for distance learners on a Roman History module. We found that relaxed tutorials were welcomed by students with anxiety disorders, caring responsibilities, chronic conditions and low confidence, as well as by autistic students. Since the project was concluded in 2023, relaxed tutorials have been rolled out across further Classical Studies modules at The Open University. Their principles and structure offer a new way of looking at accessibility adjustments which could be adapted to other teaching contexts and levels.
Empirical studies on bilingual children’s reference production have often focussed on comparisons with monolingual peers. In this study, we introduce the concept of ‘reference profiles’: Speakers may exhibit similar or different behaviours in reference production, independently of whether they belong to a specific group (e.g., monolinguals or bilinguals) or whether their production adheres to some norm. Thirty-seven Greek–Italian bilingual children (Mage = 9;4, range 7;10–11;6) performed narrative retelling tasks in both of their languages, as well as vocabulary tasks and various cognitive tasks. The results show that the children had a good mastery of reference (i.e., appropriately using null pronouns, full pronouns or full nouns) in both of their languages. Using cluster analyses, we identified two distinct reference profiles. Further investigation showed that these profiles differed in both their sustained attention and in the use of overspecified referring expressions in contexts where reference to the same referent was maintained. These results are interpreted in light of current cognitive theories of (bilingual) reference processing and emphasise the potential of reference profiles for the study of other domains beyond bilingual reference production.
To explore how patients and general practice professionals in low-income neighborhoods experienced the increase of remote care during COVID-19.
Background:
As the GP (general practitioner) is the first point of contact in Dutch health care, there are concerns about access to remote care for patients from low-income neighborhoods. Now that general practice professionals have returned to the pre-pandemic ways of healthcare delivery, this paper looks back at experiences with remote care during COVID-19. It investigates experiences of both patients and general practice professionals with the approachability and appropriateness of remote care and their satisfaction.
Methods:
In this qualitative study, 78 patients and 18 GPs, 7 nurse practitioners and 6 mental health professionals were interviewed. Interviews were held on the phone and face-to-face in the native language of the participants.
Findings:
Remote care, especially telephone consultation, was generally well-approachable for patients from low-income neighborhoods. Contrarily, video calling was rarely used. This was partly because patients did not know how to use it. The majority of patients thought remote care was possible for minor ailments but would also still like to see the doctor face-to-face regularly. Patients were generally satisfied with remote care at the time, but this did not necessarily reflect their willingness to continue using it in the future. Moreover, there was lack in consensus among general practice professionals on the appropriateness of remote care for certain physical and mental complaints. Nurse practitioners and mental health professionals had a negative attitude toward remote care. In conclusion, it is important to take the opinions and barriers of patients and care providers into account and to increase patient-centered care elements and care provider satisfaction in remote care. Integrating remote care is not only important in times of crisis but also for future care that is becoming increasingly digitalized.
The graphical user interface was introduced to democratize access to computer systems by simplifying hardware and visual interfaces. Technological advancements further reduced the constraints, primarily benefiting the mainstream users. However, the specialized needs of the critical users have always been neglected. This paper delves into the ergonomics of the mouse pointer and the computer mouse, focusing on left-handed computer users as a critical user category to develop and propose a universal design solution to integrate left-handers as a mainstream user category in a computer interface.
The coronavirus disease-2019 (COVID-19) pandemic and the mobility restrictions governments imposed to prevent its spread changed the cities’ ways of living. Transport systems suffered the consequences of the falling travel demand, and readjustments were made in many cities to prevent the complete shutdown of services. In Córdoba, the second largest city in Argentina, the Municipality dictated route cuts and reduced frequencies to sustain the buses and trolleys system. In 2022, Martinazzo and Falavigna assessed potential accessibility to hospitals before (2019) and during the pandemic (2021). Overall, the study indicated that average travel times increased by 20% and that the gap between less vulnerable and more vulnerable population quintiles reached almost 8 points. In this paper, potential accessibility to public hospitals in 2022 and 2023 is calculated using Martinazzo and Falavigna’s (2022) work as a baseline to compare, considering that neither cutting the services during the pandemic nor recovering the service after the pandemic the Municipality performed an accessibility assessment. The main results showed that, despite the system having almost recovered its extension by 2023, it maintained the regressive tendency between less vulnerable and more vulnerable population quintiles, as the difference in average travel time between these two groups reached up to 14 min, while the cumulative opportunities measure for the high-income groups was up to 68% higher than the most vulnerable households.
An overview of testing and measurement in North America is provided, covering topics related to privacy laws and regulations, online proctoring, artificial intelligence, accommodations, accessibility, and the “opt out of testing” movement that are currently defining measurement in North America. This is not to say that these challenges are unique to North America; in fact, the challenges related to these topics are being faced all over the world in varying degrees and the same opportunities exist, but these topics are of particular importance when it comes to measurement and assessment in North America. Building on these observations, a discussion of how advances in technology and computing power provide an opportunity to challenge the status quo related to assessment; these advancements will allow assessment of skills in more authentic ways that will provide better insight into someone’s knowledge, skills, and abilities. The question we should be asking and attempting to answer is “How can assessment developers leverage the power of the cloud and technology to measure skills more accurately and create higher fidelity in the assessment process?”
The everyday work of a manuscript editor who works independently is variously styled as:
intellectual labour
highly skilled work
technical or craft work
support for creators or publishers
piecemeal, gig or cottage industry work
contracting or labour hire, consulting or supply of communication services.
Regardless of what you call it, when you work as an independent, consulting or freelance editor, you are your business. In other words, there is no substitute for the unique combination of skills, qualifications, expertise and experience embodied within you. If you fail, your business fails. If you can make a go of the business side of things, you will have a certain level of comfort and peace of mind to pursue your professional interests.
The mere mention of the term “plagiarism” can strike fear into the heart of an academic editor; likewise “attribution” and “citation”. Editors of fiction and poetry can take no great comfort, either: our Nemesis might be found in the subgenre fan fiction and the saying that “imitation is the sincerest form of flattery”.
So, what exactly is literary appropriation, and what is its relationship to plagiarism?
Important definitions for a professional editor and writer: audience, work/s, authenticity, sensitivity, diversity, accessibility, inclusivity, editorial judgement
There are many definitions of what might constitute literary appropriation. On the side of generosity and openness is the idea of using a well-known literary work as inspiration for a reworking, or re-imagining, so as to offer a new or extended perspective or meaning. An intellectual or scholarly approach might be to explore intertextuality or commentary, whereby elements of one work are explicitly or implicitly referenced in another. A more critical interpretation might be that of a hostile takeover of minoritised languages and cultures in post-colonial societies. This section explores some interpretations of literary appropriation.
If there is to be a singular conclusion to this book, it is that we live in increasingly uncertain times and thus, as editors, it behoves us to embrace uncertainty in all aspects of our work – or, at least, to learn to live with it. Embracing uncertainty in the professional context can be empowering: it enables us to be flexible and open to new ideas, to new ways of thinking and doing things, to be innovative. Learning to live with uncertainty can also help to build our personal resilience. If the concept of resilience appears to be an overused cliché, that is understandable because it is increasing in importance to life as we know it in the 21st century.
How might we go about reading and assessing the worthiness of manuscript or published work?
Commentators have long responded to accusations that Shakespeare’s portrayal of Shylock in The Merchant of Venice was anti-Semitic. Nabokov’s Lolita, considered by some critics to be one of the best works of the 20th century, is also described as an erotic novel advocating paedophilia. Atwood’s The Handmaid’s Tale is considered both a warning about the dangers of encroaching religious and patriarchal fundamentalism, and a depiction of feminism as a new form of misogyny.
In your view, do these books represent literary value? Why, or why not?
Writers have a responsibility to reflect the standards of the society in which they are creating their works and earning their living. They have the good fortune of being able to “speak” directly to their readers, and thereby to inform and educate them (however subtly that might occur), as well as to entertain and inspire.
The people they write about in non-fiction works and the characters they create in works of fiction represent real people in society in one way or another: good, bad, mediocre or indifferent, or a mixture of some or all of those qualities.
As humans we all deserve to be depicted as we are and as we choose to be identified: authentically and respectfully, and not as caricatures or stereotypes. The considerable body of published research and other literature illustrates just how harmful stereotypes can be. For example, negative racial stereotypes, including internalised racism, have been directly associated with actual harm to people’s economic/material, physical, intellectual, emotional and spiritual wellbeing.
The most important thing you can do to support your professional and personal wellbeing is to cultivate personal awareness and to understand what support you need. This chapter introduces methods and approaches you can use to help maintain a happy balance between a busy and fulfilling professional life and personal health and wellbeing.
In large and medium-sized organisations, workplace policies are usually developed by executive boards or human resources committees and are implemented by managers; commonly known as a “top-down approach”. As already stated, many of the concepts and practices covered in this guide are new or in development, so editorial staff have an important role to play in influencing policy discussions and development, perhaps even implementation.
Small businesses, community organisations and not-for-profits may not have a written policy but there may be practices of employing or contracting paid and/or volunteer workers that result in a diverse and inclusive workforce, to a greater or lesser extent.
In contrast, to policies, style guides are very much the domain of editorial staff and freelancers or consultants who work on print and digital content. Editors and proofreaders, for example, must keep up to date with word choices, usages and other trends in the literature (books and journals) as well as in society more broadly (news, commentary and the arts). An advantage of this “bottom-up” approach is that editors can provide on-the-ground intelligence in real time, and this enables house styles to reflect readers’ perspectives and practices.
In 2016, the Australian literary world was abuzz with rage when celebrated writer Yassmin Abdel-Magied walked out of the opening keynote address to the Brisbane Writers Festival. The speech was being delivered by Orange Prize-winner Lionel Shriver, American activist and author of such works as We Need to Talk About Kevin (2003) and The Mandibles (2016).
Abdel-Magied, Queensland”s Australian of the Year in 2015, in an article for The Guardian, described the speech as “a poisoned package wrapped up in arrogance and delivered with condescension“, because Shriver”s speech, “was a monologue about the right to exploit the stories of “others”, simply because it is useful for one”s story [book].”
This, in essence, is how the topic of cultural appropriation – or, rather, misappropriation – came to mainstream attention in Australia, but of course it had been a bone of contention for many Aboriginal and Torres Strait Islander writers and writers of colour for decades.
As many might have anticipated, the Australian Publishing Industry Workforce Survey on Diversity and Inclusion (API Survey) found the publishing industry in Australia “is largely white, including a high percentage who identify as British. Fewer than 1% of publishing professionals are First Nations Australians … [t]he workforce is concentrated in Sydney and Melbourne, skews young and female, especially at the lower levels, and is more likely than the general population to be privately educated and to have a postgraduate degree… [and there is] high LGBTQ+ representation”. In introducing the study, Bowen and Driscoll note that while they are not surprising, these findings signal that “the potential for change is now evident: the data provides the insights necessary for targeted redress initiatives”. Future iterations of the survey will be important in measuring the impact of such redress.
Editors should approach their work with an informed worldview, ensuring that harmful stereotypes, cultural insensitivities and inaccurate information are avoided. Knowing how to do so – and what to replace them with – can be tricky. Editing for Sensitivity, Diversity and Inclusion is a guide for professional editors, providing evidence-based definitions, recommendations and support for emerging and experienced editors working with fiction and non-fiction genres. Part One introduces the foundations of professional editing and what editors need to know to conduct themselves well in professional contexts. Part Two applies this knowledge to professional practice, covering topics such as plagiarism, literary and cultural appropriation, critical appraisal, and developing a workplace policy and style guide. Part Three explores an extensive range of topics relevant to editing for sensitivity, diversity and inclusion, including addiction, dependence and recovery; class and socio-economic status; indigeneity; religious, spiritual and other belief systems; sex and gender identity; and trauma and torture.