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Interstage monitoring programs for single ventricle disease have been developed to reduce morbidity and mortality. There is increased use of telemedicine and mobile application monitoring. It is unknown if there are disparities in use based on patient socio-demographic factors.
Methods:
We conducted a retrospective cohort study of patients enrolled in the single ventricle monitoring program and KidsHeart application at a single centre from 4/21/2021 to 12/31/2023. We investigated the association of socio-demographic factors with telemedicine usage, mobile application enrollment and usage. We assessed resource utilisation and weight changes by program era.
Results:
There were 94 children in the cohort. Patients with Norwood and ductal stent had higher mean telemedicine visits per month (1.8 visits, p = 0.004), without differences based on socio-demographic factors. There were differences in application enrollment with more Black patients enrolled compared to White patients (p = 0.016). There were less Hispanic patients enrolled than Non-Hispanic patients (p = 0.034). There were no Spaish speaking patient’s enrolled (p = 0.0015). There were no patients with maternal education of less than high school enrolled and all those with maternal education of advanced degree were enrolled (p = 0.0016). There was decreased mobile application use in those from neighbourhoods in the lowest income quartile. There were decreased emergency department visits with mobile application monitoring. Mean weight-for-age z-scores had increased from start to completion of the program in all eras.
Discussion:
Differences were seen in mobile application enrollment and usage based on socio-demographic factors. Further work is needed to ensure that all patients have access to mobile application usage.
Edited by
Richard Williams, University of South Wales,Verity Kemp, Independent Health Emergency Planning Consultant,Keith Porter, University of Birmingham,Tim Healing, Worshipful Society of Apothecaries of London,John Drury, University of Sussex
This chapter introduces the notion of identifying primary and secondary stressors as a way of drawing attention to the many sources of stress that arise either as a consequence of disastrous events of long or short duration, or because they frame the context in which those disastrous events occur. The events that we include in this approach are broad in nature; they include emergencies of all kinds, major incidents, outbreaks of high consequence infectious diseases (HCIDs), terrorist attacks, and conflicts. We begin by outlining the context in which the circumstances that cause stress operate. Then we define primary and secondary stressors. This approach helps us to understand sources of stress in all kinds of adverse and disastrous events. We conclude that the sources of stress that we have researched in these differing emergencies differ, but also have much in common.
That differences in health outcomes exist between groups is unsurprising and, in some cases, seems subject to ‘natural law’. Such ‘common sense’, arguably unavoidable differences are termed ‘health disparities’ – a term usually understood to be value-neutral. By contrast, more complex differences in health outcomes which seem to derive from differences in opportunities or systemic bias are deemed ‘unfair’ and are referred to as ‘health inequalities’ or ‘health inequities’.
This chapter delves further into how we describe health inequalities and different measures and data that illustrate these differences. Causes and mechanisms of inequality are explored, followed by examples of inequality across groups with certain population characteristics, including ethnicity; gender, sexual orientation and gender identity; disability; and socially excluded groups. Finally, approaches and strategies for reducing health inequalities are presented, with potential actions described at the micro-, meso- and macro-levels.
The causes of ill health and death are changing and, as we live longer, new health-preventable problems emerge, bringing new challenges. Improving health (physical, mental or both) and promoting general well-being remain major priorities.
Just as important, the difference in health status between rich and poor continues to grow. At a global level, the picture is even more complex. Although there is some evidence that life expectancy is beginning to plateau in developed countries such as the UK, the biggest potential to improve health still lies in addressing inequality between or within countries.
Therefore, this chapter:
summarizes the models of health improvement that are prevalent today;
introduces a combined conceptual model to describe the factors affecting health in modern times; and
presents some case studies of interventions designed to improve health which offer important insight and learning.
In 2014, Nigeria halted transmission of wild poliovirus for the first time in its history. A critical enabling component in this historic achievement was the use of satellite data to produce more accurate maps and population estimates used in planning and implementing vaccination campaigns. This article employs a value-of-information approach to estimate the net socioeconomic benefits associated with this use of satellite data. We calculate the increase in the likelihood of halting transmission of polio associated with the use of satellite-based information compared to traditional data sources, and we consider the benefits associated with savings to the healthcare system as well as health benefits. Using a conservative approach focused on just 1 year of benefits, we estimate net socioeconomic benefits of between $46.0 million and $153.9 million. In addition to these quantified benefits, we also recognize qualitative benefits associated with improving human health, reaching marginalized communities, and building capacity among local populations. We also explore the substantial benefits associated with follow-on projects that have made use of the satellite-based data products and methodologies originally developed for the Nigeria polio eradication effort.
This chapter discusses the various factors that determined one’s socioeconomic position in the ghetto and the relationship between that status and food access. It explores the ways in which these various factors might intersect and benefit or impede access to food resources. Relative wealth and poverty before the war, social networks, geographical location before and during the war, gender and religious identity are each explored.
Although the primary aim of Just as Deadly is to present information on female serial killers (FSKs), the author discusses a comparison of FSKs and male serial killers (MSKs) to illustrate the dramatic differences between their crimes. As described in Evolutionary Behavioral Sciences, the author and her team investigated sex differences in serial murder through an evolutionary psychological lens but also collected data on other background and mental health variables, as empirical comparisons of FSKs and MSKs are virtually nonexistent in the scientific literature. Data collected from 55 MSKs and 55 FSKs revealed sex differences in relationship status, educational attainment, and socioeconomic status. Moreover, nearly 90% of MSKs and 43% of FSKs had reported mental health issues. These results show that MSKs have more than a fourfold chance of having a mental illness compared to the population and are twice as likely as FSKs to have documented issues. The cases of MSKs Ed Gein and John Wayne Gacy describe mental illness issues and are used to demonstrate drastic differences in serial murder modus operandi and victims.
Harrison discusses her team’s research on female serial killers (FSKs) who committed their crimes in the US, beginning with FSK background. Topics include demographics, physical appearance, education, socioeconomic status, developmental history, family events, and age of first murder. The occupations of FSKs are discussed. Alarmingly, FSKs are often nurses, nurse’s aides, or other caregivers. The author compares her findings with those from other notable studies, such as from criminologist Eric Hickey. The rarity of empirical research on FSKs is underscored. The author describes her sample of FSKs derived using the mass media method of forensic research, examining information from newspapers, television networks, courts, government records, and historical societies. Harrison underscores the importance of incorporating and citing information from valid source material. Long-term effects of childhood maltreatment and a traumagenic background are underscored. To illustrate chapter concepts, the author presents the cases of FSKs Dorothea Puente and Jane Toppan and revisits the case of FSK Aileen Wuornos.
Whale watching is defined as tours by air, sea or land to view any of the 86 reported species of whales, dolphins and porpoises in their natural habitat where a commercial aspect exists (IFAW 1999). Whale-watching platforms include small boats, sailboats, cruise ships, inflatables, kayaks, helicopters and airplanes, and the activity can also include observation from land-based sites and approaches made by swimmers. In addition to being non-disruptive to the cetacean population, ‘responsible whale watching’ has many potential educational, environmental, scientific and socioeconomic benefits for human communities (Hoyt & Iñíguez 2008). As a result, tourism of this kind can have a positive effect on nature through the promotion of a general interest and awareness in cetaceans, sustainable economic growth for local economies (which are often otherwise struggling), therefore providing multiple benefits, including improved motivation to preserve marine wildlife.
This study evaluates a large (N > 366,000) sample of young women (15-18 years) from 64 lower- and middle-income countries for associations between height, household wealth, and schooling outcomes, with a focus on secondary school attendance. A pooled sample and regional samples (Latin America, South/Southeast Asia, East Africa, and West Africa) are evaluated. A dual purpose is to evaluate both associations between height and schooling, and potential height-wealth interactions such that height associations to schooling vary over levels of wealth. Ordered probit analysis indicates positive marginal probabilities from height on secondary school attendance in all samples, with diminishing probabilities in the Latin America and South/SE Asia samples, and flat/increasing probabilities in the African samples. For South/SE Asia and taller women in Latin America, height associations are stronger at lower household wealth. For both African samples and shorter women in Latin America, height associations are stronger at higher wealth. The findings suggest that the height-schooling relationship may derive from the influence from early-life health, and may also be affected by differences in health and education environments as suggested by variations across regions and height-wealth interactions within regions.
Prior literature has indicated low socioeconomic status (SES) and regional differences as epidemiological risk factors for disability pension (DP) due to mental disorders.
Objectives
Our studies aimed to examine these associations and differences in greater detail, with separate consideration of the risk factors for mood disorders (F30–39) and non-affective psychotic disorder (F20–29) DP.
Methods
Subjects (N = 36 879) were all those granted DP due to a mental disorder for the first time between 2010 and 2015 in Finland. All the subjects were matched with three controls. Education, income and occupational status were used as measures of SES. Conditional logistic regression models were used to study SES differences. Negative binomial regression analysis was used to study the levels of DP risk in the Finnish hospital districts.
Results
DP recipients had low educational and income levels and often lived alone. The risk of DP was greater in white-collar occupational groups compared with blue-collar workers. Students had the greatest risk of DP for all mental and mood disorders. Significant differences in the regional mental disorder DP risks did not appear to follow the traditional Finnish health differences.
Conclusions
We found evidence of SES factors and regional variation associating with mental disorder-related severe loss of working and studying ability in a disorder-specific way. The increased risk of white-collar worker DP could be related to the psychosocially demanding contemporary working life. Regional variation in DP may at least partly relate to differences in regional mental health service systems.
The practice of keeping birds is a long-held tradition in South-east Asia, including in Singapore. Beyond market surveys that have documented Singapore’s sizeable bird market, there is a compelling need to understand the underlying drivers of demand for songbirds, and how these are influenced by social factors. We conducted semi-structured surveys of 114 songbird owners in Singapore, so as to determine their behaviour, demography, and preferences for owning songbirds and mapped Singapore’s songbird trade network. Forty-four percent of respondents reported to not prefer either wild-caught or captive-bred birds and another 37% preferred captive-bred birds. Over half (51%) did not think that there were any differences in the singing capabilities of the songbird from either source. Influence from family members and close contacts were cited as the most influential motivational factor for bird-keeping. The majority of respondents were middle-aged (77% aged 40 and above), and two-thirds (67%) were of Chinese ethnicity. Purchasing power and socio-economic status were not deemed to be strong considerations for owning songbirds. Neither was songbird ownership regarded as a status symbol, in contrast to parrot ownership in Singapore. Instead, social factors played influential roles in the songbird community, shaping the way owners gather, interact, and trade at bird shops and bird cage hanging spots. This study offers novel insights into the motivations underlying songbird ownership and its complex community linkages. We advocate for conservation interventions to target specific demographic groups that are embedded and influenced by communities so as to promote sustainable trade in songbirds.
The role of sociodemographic and economic characteristics in mental distress has been rarely investigated in Indonesia.
Aims
To investigate the prevalence of common mental disorders (CMD) and identify any associations between mental distress and sociodemographic and economic characteristics among communities living in urban and rural (peri-urban) areas.
Method
A community-based household survey was conducted in the province of Aceh, Indonesia, in 2018. The 20-item Self Reporting Questionnaire (SRQ-20) screening tool was used to measure symptoms of CMD. Information on sociodemographic characteristics, family functioning, labour market outcomes and healthcare costs was collected. Multivariate regressions were conducted to analyse the relationships between the measures of mental distress and sociodemographic and economic characteristics.
Results
We found that 14% of the respondents had CMD symptoms. SRQ-20 scores were higher for female, older and lower-educated individuals. CMD prevalence was higher among non-married participants and clustered within families. Participants with CMD perceive their families as performing significantly better in the dimensions of affective involvement and behaviour control compared with their counterparts. Their work was more often affected by negative feelings; they were also twice as likely to report a recent physical or mental health complaint and faced twice the treatment costs compared with their non-affected counterparts.
Conclusions
The prevalence of mental disorders is especially high in disadvantaged population groups. Moreover, mental distress is associated with a lower perceived productivity and a higher physical health burden.
We aimed to investigate the heterogeneity of seasonal suicide patterns among multiple geographically, demographically and socioeconomically diverse populations.
Methods
Weekly time-series data of suicide counts for 354 communities in 12 countries during 1986–2016 were analysed. Two-stage analysis was performed. In the first stage, a generalised linear model, including cyclic splines, was used to estimate seasonal patterns of suicide for each community. In the second stage, the community-specific seasonal patterns were combined for each country using meta-regression. In addition, the community-specific seasonal patterns were regressed onto community-level socioeconomic, demographic and environmental indicators using meta-regression.
Results
We observed seasonal patterns in suicide, with the counts peaking in spring and declining to a trough in winter in most of the countries. However, the shape of seasonal patterns varied among countries from bimodal to unimodal seasonality. The amplitude of seasonal patterns (i.e. the peak/trough relative risk) also varied from 1.47 (95% confidence interval [CI]: 1.33–1.62) to 1.05 (95% CI: 1.01–1.1) among 12 countries. The subgroup difference in the seasonal pattern also varied over countries. In some countries, larger amplitude was shown for females and for the elderly population (≥65 years of age) than for males and for younger people, respectively. The subperiod difference also varied; some countries showed increasing seasonality while others showed a decrease or little change. Finally, the amplitude was larger for communities with colder climates, higher proportions of elderly people and lower unemployment rates (p-values < 0.05).
Conclusions
Despite the common features of a spring peak and a winter trough, seasonal suicide patterns were largely heterogeneous in shape, amplitude, subgroup differences and temporal changes among different populations, as influenced by climate, demographic and socioeconomic conditions. Our findings may help elucidate the underlying mechanisms of seasonal suicide patterns and aid in improving the design of population-specific suicide prevention programmes based on these patterns.
We studied the relation between individual and neighborhood socioeconomic characteristics and the probability of:
– new long-duration antidepressant treatment;
– early antidepressant discontinuation.
Methods
We followed two cohorts of inhabitants of Marseille (aged 18–64 years) covered by the National Health Insurance Fund (NHIF) for 2.5 years. In the first cohort (316,412 individuals in 2008), we studied new long-duration antidepressant treatments (≥ 4 antidepressants prescription claims within 6 months after the index claim, and none in the 6 months before). The second cohort was restricted to the 14,518 individuals with a new episode of antidepressant treatment prescribed by a private GP in 2008–2009 to study early treatment discontinuation: < 4 antidepressant prescription claims in the 6 months following the index claim. We developed a deprivation index at the neighborhood level (census block) and used multivariate multilevel logistic models adjusted for consultations with GPs and psychiatrists. In the second cohort, analyses were further adjusted on GPs characteristics.
results
First cohort: the probability of new long-duration antidepressant treatments was negatively associated with both individual low income and neighborhood deprivation. Second cohort: low income, and prescribers’ clientele composition (high proportion of disadvantaged patients) were independently associated with an increased risk of early discontinuation. A significant interaction was found between low income and gender.
Conclusions
Our results add further evidence supporting the existence of inequalities in antidepressant treatment at both the individual, GP and neighborhood levels, and that these inequalities occur principally during the processes of care. Inequalities in antidepressant continuation are more pronounced among women. Further research is warranted to improve our understanding of their mechanisms.
International best-practice guidelines for the management of first-episode psychosis have recommended the provision of psychoeducation for multifamily groups. While there is ample evidence of their efficacy in multiepisode psychosis, there is a paucity of evidence supporting this approach specifically for first-episode psychosis. We sought to determine whether a six-week caregiver psychoeducation programme geared specifically at first-episode psychosis improves caregiver knowledge and attitudes.
Methods
Caregivers of people with first-episode psychosis completed a 23-item adapted version of the self-report Family Questionnaire (KQ) and a 17-item adapted version of the self-report Drug Attitudes Inventory (DAI) before and after the six-week DETECT Information and Support Course (DISC). Using a Generalised Linear Repeated Measures Model, we analyzed the differences in proportions of correct answers before and after the programme.
Results
Over a 24-month study period, 31 caregivers (13 higher socioeconomic; 13 lower socioeconomic; five unspecified socioeconomic; 19 female; 12 male) participated in the DISC programme and completed inventories before and after the course. Knowledge of psychosis and specific knowledge of medication treatment improved among caregivers overall (p < .01; effect sizes 0.78 and 0.94 respectively). There were no significant gender or socioeconomic differences in any improvement.
Discussion
This study confirms that caregiver psychoeducation specifically for first-episode psychosis directly improves knowledge of the illness overall and, in particular, knowledge of medication. Gender is not a factor in this, while the lack of any socioeconomic differences dispels the myth that patients in lower socioeconomic groups are disadvantaged because their caregivers know less.
Epidemiologic surveys conducted across Europe indicate that the lifetime prevalence of social anxiety disorder in the general population is close to 7%. The disorder in adulthood rarely presents in its ‘pure’ form and 70–80% of patients have at least one other psychiatric disorder, most commonly depression. Social anxiety disorder is a risk factor for the development of depression and alcohol/substance use or dependence, especially in cases with an early onset (< 15 years). Individuals with social anxiety disorder have significant functional impairment, notably in the areas of initiation and maintenance of social/romantic relationships and educational and work achievement. The economic consequences of social anxiety disorder are considerable, with a high level of diminished work productivity, unemployment and an increased utilisation of medical services amongst sufferers. Effective treatment of social anxiety disorder would improve its course and its health and economic consequences.
This chapter critically evaluates explanations that identify Western colonization/exploitation of Islam as the key factor for underdevelopment. It then explores the roles of the ulema’s anti-progressive ideas and political authoritarianism in contributing to socioeconomic underdevelopment in Muslim countries. The chapter uses the term “vicious circle” to highlight the interactivity of these problems. Next, the chapter examines the role of history and institutions. It stresses that exclusionary institutions in the Muslim world have been produced by authoritarian rulers, who hold political power, and the ulema, who provide the ideological legitimation. The chapter concludes with an explanation of why it is necessary to analyze the history of Muslim societies and polities in order to assess their contemporary problems, linking Part I of the book to Part II.
This chapter analyzes the problem of violence in many Muslim countries. It emphasizes that there is no Muslim exceptionalism; violence has occurred in all parts of the world. The frequent Muslim terrorist activities are a relatively recent trend that began in the 1980s. This trend is related to the worldwide decline of socialism and the rise of religious political movements. The chapter critically analyzes the explanations that point to either Islam or Western colonialism as the root cause of violence in several Muslim countries. The chapter examines the roles of Jihadi-Salafism and the ulema in Muslim countries’ problems with violence. It emphasizes that military conflicts and terrorism have multiple causes, including socioeconomic and political conditions, especially in authoritarian states.
Haiti has the highest human rabies burden in the Western Hemisphere. There is no published literature describing the public's perceptions of rabies in Haiti, information that is critical to developing effective interventions and government policies. We conducted a knowledge, attitudes and practices survey of 550 community members and 116 health professionals in Pétionville, Haiti in 2013 to understand the perception of rabies in these populations. The majority of respondents (85%) knew that dogs were the primary reservoir for rabies, yet only 1% were aware that bats and mongooses could transmit rabies. Animal bites were recognized as a mechanism of rabies transmission by 77% of the population and 76% were aware that the disease could be prevented by vaccination. Of 172 persons reporting a bite, only 37% sought medical treatment. The annual bite incidence rate in respondents was 0·9%. Only 31% of bite victims reported that they started the rabies vaccination series. Only 38% of respondents reported that their dog had been vaccinated against rabies. The majority of medical professionals recognized that dogs were the main reservoir for rabies (98%), but only 28% reported bats and 14% reported mongooses as posing a risk for rabies infection. Bites were reported as a mechanism of rabies transmission by 73% of respondents; exposure to saliva was reported by 20%. Thirty-four percent of medical professionals reported they would wash a bite wound with soap and water and 2·8% specifically mentioned rabies vaccination as a component of post-bite treatment. The majority of healthcare professionals recommended some form of rabies assessment for biting animals; 68·9% recommended a 14-day observation period, 60·4% recommended a veterinary consultation, and 13·2% recommended checking the vaccination status of the animal. Fewer than 15% of healthcare professionals had ever received training on rabies prevention and 77% did not know where to go to procure rabies vaccine for bite victims. Both study populations had a high level of knowledge about the primary reservoir for rabies and the mode of transmission. However, there is a need to improve the level of knowledge regarding the importance of seeking medical care for dog bites and additional training on rabies prevention for healthcare professionals. Distribution channels for rabies vaccines should be evaluated, as the majority of healthcare providers did not know where rabies vaccines could be obtained. Canine rabies vaccination is the primary intervention for rabies control programmes, yet most owned dogs in this population were not vaccinated.