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Families have the potential for causing harm and can play a part in the onset of mental health problems. Women’s behaviour is judged by a different set of standards to that of men. Parents still socialise girls differently from boys. The pressures of family life chip away at our confidence and self-esteem and powerfully influencing our ability to make successful adult relationships. Girls and women may be told that they are ‘hysterical’ or ‘out of their mind’ when their emotional response is quite justified by what is happening to them. However, life pressures can also trigger mental illness, and family stress such as living in poverty and with domestic violence can make this worse. Girls and young women experience much more sexual abuse during childhood than boys – the sheer extent of which was not acknowledged in the past. Improving material and psychological support to families is a mammoth task, but what is within our power, among our own friends, families and communities, is to do something when we suspect that young women are experiencing trauma and abuse – believing, helping and supporting them to find someone to share their stories with who is trustworthy and skilled.
Patients with univentricular hearts can only be palliated by a staged surgical procedure that carries a high morbidity and mortality risk. The aim of this study was to examine the emotional demands, psychosocial burden, and quality of life of parents with children with univentricular hearts compared to parents of children with a simple heart defect, those with no heart defect and children with chronic diseases.
Methods:
An anonymous questionnaire was created to interview parents about their quality of life, stressors, needs, strategies for coping with illness, and partnership satisfaction.
Results:
73 families participated in the study. Parents of children with univentricular hearts experience a significantly higher psychosocial burden, limitations in daily life, and distress in family interactions, as well as greater emotional distress compared to the other study groups. When comparing the families of children with other chronic diseases (e.g. cystic fibrosis, chronic arthritis and diabetes), these differences remained significant.
Conclusion:
The study confirms a higher psychosocial burden, restrictions in daily life and a lower quality of life of parents with children with univentricular hearts, compared to parents of children with simple heart defects and parents of heart-healthy children or those with other chronic diseases. Since this condition persists until adolescence and adulthood, the families are exposed to special challenges and stresses throughout their lives. This has yet to be adequately addressed in the management of these families.
This chapter begins with the families of Hannibal and Scipio. Hannibal’s mother is unknown; the name of Scipio’s abnormally pious mother, Pomponia, is preserved only in a Latin epic poem by Silius Italicus (first century CE). The older male relatives of both Hannibal and Scipio were distinguished soldiers. Hannibal married an Iberian woman; Scipio, a member of the Cornelian gens (group of families), married the daughter of another Roman aristocrat, from the Aemilian gens. Carthaginian and Roman naming habits are explained. Hannibal’s surname Barca is a family name, not an ‘ethnic’ – indicator of local origin – from the Greek city Barce. (A contrary argument is rejected in Appendix 2.1.) The childhood and youth of Hannibal and Scipio are discussed, including Hannibal’s famous oath in Iberia never to be friendly to the Romans, the events of the 230s and 220s are narrated, and pre−220 Roman and Carthaginian history and society are analysed.
Given a family of graphs $\mathcal{F}$ and an integer $r$, we say that a graph is $r$-Ramsey for $\mathcal{F}$ if any $r$-colouring of its edges admits a monochromatic copy of a graph from $\mathcal{F}$. The threshold for the classic Ramsey property, where $\mathcal{F}$ consists of one graph, in the binomial random graph was located in the celebrated work of Rödl and Ruciński.
In this paper, we offer a twofold generalisation to the Rödl–Ruciński theorem. First, we show that the list-colouring version of the property has the same threshold. Second, we extend this result to finite families $\mathcal{F}$, where the threshold statements might also diverge. This also confirms further special cases of the Kohayakawa–Kreuter conjecture. Along the way, we supply a short(-ish), self-contained proof of the $0$-statement of the Rödl–Ruciński theorem.
Supporting a relative living with a psychotic disorder can be uniquely challenging when compared to other health conditions, leaving many family carers isolated and struggling with questions: Why us? How do others cope? Is it my fault? How much more can I take? This collection of personal accounts provides family carers with a helpful framework to make sense of their individual experiences and support their own coping and wellbeing. It details the myriad of positives, challenges and life-changing experiences that families encounter following the development of a psychotic illness in a loved one. The authors of these accounts are varied and include the parents, partners, siblings and children of those experiencing psychosis. This book will also serve as an excellent resource for psychiatrists, psychiatric nurses, psychologists, social workers, GPs and students who should find the book relevant both for their own practice and for those families they support.
Meeting the needs of people accessing healthcare from ethnic minority (EM) groups is of great importance. An insight into their experience is needed to improve healthcare providers’ ability to align their support with the perspectives and needs of families. This review provides insight into how families from EM backgrounds experience children’s palliative care (CPC) by answering the question, “What are the experiences of EM families of children’s palliative care across developed countries?”
Methods
A systematic search of articles from 6 databases (Scopus, Medline, Web of Science, APA PsycINFO, CINAHL, and Global Health) with no limit to the date of publication. The search was conducted twice, first in June 2022 and again in December 2022. The extracted data were analyzed using thematic synthesis.
Results
Eight studies explored the experiences of families of EM in different high-income countries. Four themes were identified: unmet needs leading to communication gaps, accessibility of hospital services and resources, the attitude of healthcare workers, and the need for survival as an immigrant.
Significance of results
Overall, the study shows EM families rely heavily on healthcare professionals’ cultural competence in delivering palliative care for their children. There is an interplay between EM families’ culture, spiritual ties, communication, and social needs from this review. Understanding how to bridge the communication gap and how families use their culture, faith, and spirituality to manage their pain, and grief and improve their quality of life would be extremely beneficial for healthcare practitioners in increasing their support to EM families accessing CPC.
As the largest publicly funded, nonformal education system in the United States, Cooperative Extension (a.k.a. “Extension”) has played a critical role in how technologies and innovations generated through state agricultural experiment stations (AES) and land-grant universities (LGUs) in the United States have been translated and shared directly to its constituents for over a century. Extension has served as a unique and robust system to collaborate, generate, and disseminate research, as well as to engage in mission-oriented work to support communities in optimizing their current and future circumstances and through collaborative partnerships shaping the ways in which we cultivate and preserve food, how we educate and care for our children, manage our finances, work with communities, and support populations disproportionality affected by structural inequities. The current volume brings together leading scholars to discuss Extension’s contributions to the well-being of children, youth, families, and communities; and to critically reflect on Extension’s future directions in light of significant shifts in the context in which it now operates.
Extension is uniquely positioned to reach and support underserved and underrepresented families. Although Extension excels at providing evidence-based programming for mothers, children, and youth, it has generally been less successful in engaging fathers. Recent evidence finds increased balanced sharing of caregiving responsibilities and fathers’ desire to engage with their children. Engaging fathers and incorporating father-centric programming is more important than ever. This chapter will highlight promising strategies for engaging fathers in Extension, including an example of a statewide needs assessment, technology-based programming, and community-based partnerships. We describe available evidence-based programs and approaches, both currently utilized with fathers and aptly positioned to accommodate fathers, along with promising opportunities and important considerations for Extension moving forward. Shifting the focus to better serve fathers in family-based programming will better engage and support underserved and vulnerable families, and Extension is a system that is critically important for meeting this challenge.
Using the public-use files of the Canadian Community Health Survey and a difference-in-differences methodology, we estimate the impact of a universal income transfer (the Universal Child Care Benefit) on food insecurity, separately for adults and children within households. The income transfer reduced the risk of overall food insecurity by 20% at the child level, and the effect was larger in households with lower education or income. The transfer also reduced the likelihood of moderate/severe food insecurity among adults in single-parent families, as well as adults and children in households with secondary education or less. These findings withstand several robustness checks.
This chapter focuses on how to explore opportunities to partner with families in articulating support systems for child health and wellbeing. In particular, it explores how student educators and educators can reach out to families and develop the necessary partnerships to successfully support parents in their parenting and caring roles, with the aim of positively influencing children’s family lives, health and wellbeing.
A significant number of disaster and emergency victims are children. Yet, many hospitals are ill-prepared to care for these patients during disasters, as identified by the National Pediatric Readiness Project’s survey of hospital pediatric disaster plans. The Region V for Kids Center of Excellence created a self-assessment tool to help regions identify vulnerabilities and ways to enhance care for vulnerable children and families.
Methods:
Region V for Kids identified 9 key domains (eg, infrastructures and support mechanisms) that are important to safeguard children’s and families’ care during disasters. A self-assessment tool to assess these domains was distributed to 24 regional health care coalitions along with a 9-question usefulness survey. The self-assessment tool addressed 3 of the original domains, which have regional or national open-source databases and datapoints that health care coalitions can access for their responses.
Results:
The survey received a 50% response rate. Approximately 40% of respondents indicated they were “somewhat likely” to make changes based on data gathered by the tool. The original self-assessment tool was revised to create an expanded web-based version.
Conclusions:
Health care coalitions and localities can use this tool to evaluate pediatric preparedness, identify needed improvements, and improve outcomes for children, families, and communities.
Edited by
Richard Williams, University of South Wales,Verity Kemp, Independent Health Emergency Planning Consultant,Keith Porter, University of Birmingham,Tim Healing, Worshipful Society of Apothecaries of London,John Drury, University of Sussex
Responders in the UK attend a range of emergencies, incidents, disasters, and disease outbreaks (EIDD). Although the impacts on professional responders have been researched, documented, and are reasonably well understood, the consequences of that exposure to such incidents for their families is relatively underexplored. This chapter identifies the links between the wellbeing of families of responders and the impacts from the occupation of their emergency service family members. The support given by family members is explored in the context of social support, diffusing, and managing mental health. This is informed by empirically evidenced research projects detailing the occupational consequences for the families of responders through literature and national project work.
The aim of this study was to investigate the social and environmental factors involved in the food decision-making processes of families living on lower incomes on the Island of Ireland.
Design:
A qualitative design was employed for this study, using photovoice and creative mapping methods. Parents were requested to take photos and draw maps of their food environments. Interviews were then conducted with parents, using the materials produced by parents as a cue to discuss their food environments, influences and decision-making processes around food choices.
Setting:
The participants were interviewed online via Microsoft Teams.
Participants:
The participants were parents or guardians of children between the ages of 2 and 18 who self-defined as ‘living on a tight budget’.
Results:
Twenty-eight participants were recruited and interviewed for this study, including twelve parents in Northern Ireland and sixteen in the Republic of Ireland. The findings were mapped on to Bronfenbrenner’s Ecological Systems Theory and showed that multiple, overlapping and intersecting factors at the individual, micro-, meso-, exo-, macro- and chrono-system were implicated in family food choices. Upstream factors in particular, including structural, policy and commercial determinants, appear to be significant drivers of behaviour.
Conclusions:
While the findings suggest that a complex range of factors are involved in family food choices, it is clear that policy measures and regulations are needed to stave off the impacts of rising social inequality and food poverty. Health promoters should strive to find non-stigmatising interventions to bridge the nutritional divide experienced by lower-income families.
This chapter starts by considering the key differences that make public health practice focused on children unique to that focused on adults and older people and emphasizes the importance of early intervention as part of a life-course approach. The demography of the health of children is detailed, followed by a description of the major causes of ill health in children and young people, key public health challenges for this age group and their families and a summary of effective public health interventions to improve health and well-being and reduce inequalities. Three case studies are offered: the impact of the COVID-19 pandemic; childhood obesity; and children’s and adolescents’ mental health. These highlight the complexity of these major public health challenges, how the tools described in Part 1 can be used to understand them and the importance of strategic and system-wide approaches.
This chapter focuses on the hundreds of so-called criminal lunatics who appeared to slip between the gaps in psychiatric provision over the 1940s and ended up in the lunatic sections of the mandate’s prisons. Their abandonment, this chapter argues, was the product of often- fraught negotiations across state and society: mandate officials in particular worried that the families of the mentally ill were staging minor criminal offences in order to have their relatives bypass long waiting lists and access institutional provision. Through a careful reading of case files from the rich archive of the criminal lunatic section at Acre, this chapter delves into the complex dynamics that surrounded these individuals’ routes into – as well as out of – this institutional site. These stories reveal that neither insanity nor criminality was a stable category in mandate Palestine. But the case files, particularly the ‘delusions’ they record, also hold out the possibility of recovering the experiences and perspectives of those deemed criminally insane, and indeed their capacity to exercise a degree of agency over their lives.
This chapter brings to the fore a key theme across the second part of Mandatory Madness: the considerable agency exercised by families over the management of their mentally ill relatives. This chapter focuses in particular on the petitions that flooded the mandate government from the 1930s onwards, seeking the admission of relatives to the government’s mental institutions. These petitions are read both for what they reveal about the often-complex therapeutic strategies pursued by families, and as carefully crafted arguments about mental illness and the state’s obligations to its subjects. Petitions make clear that Palestinian Arab families in particular were much more actively engaged with questions of psychiatric care than has been often represented, incorporating the mandate’s processes, institutions, and indeed anxieties into their strategies for managing the mentally ill. Petitions reframe our understanding of the interactions between state and society in mandate Palestine, by revealing how these played out in the intimate stretches of people’s lives.
A new paradigm for continuing care policy has emerged that is based on assumptions about the benefits of caring partnerships and client-centred care delivery. Such assumptions place the interface between formal and informal care squarely on the policy agenda. The authors describe how existing research can contribute to the debate stimulated by the new policy paradigm and suggest future research that is informed by the paradigm. They argue that theory is an important tool to make policy agendas more explicit and they use human ecology theory to illustrate how theory can frame the development of research to address policy. Finally, they describe barriers to be overcome in order for policy and research to inform one another.
Charles S. Mansueto, Behavior Therapy Center of Greater Washington, Maryland,Suzanne Mouton-Odum, Psychology Houston, PC - The Center for Cognitive Behavioral Treatment, Texas,Ruth Goldfinger Golomb, Behavior Therapy Center of Greater Washington, Maryland
In this chapter, the authors shift attention to younger BFRB clients and to modifications to ComB treatment when children, family members, and other caretakers are involved in therapy. Managing these additional people presents added complexity for the therapist to manage. Ideas for helping create a supportive, therapeutic social context for younger clients are presented throughout. Commonly occurring misconceptions, anxieties and problematic relationship issues are described, explored, and addressed throughout, with an emphasis placed on coaching caregivers into positive and supportive roles in the therapeutic endeavor. Also addressed is the importance of setting realistic expectations for therapy and coaching caregivers to deal with the inevitable motivational issues that will have to be addressed for effective treatment of younger clients. Different recommendations, reflecting the varying needs of clients of different ages – infants, younger and older children, and adolescents, are provided – as are approaches for dealing with children with sensory dysregulation issues.
In this chapter, we discuss adolescence as a period of imaginative future-making, where identities are in flux and worked on, and self-consciousness enhanced. We draw on Vygotsky to argue that the conceptual thinking that marks adolescence enables them to closely analyze current realities, see connections they had not previously recognized, and grapple with complexities. These capabilities also allow adolescents to look beyond their immediate surroundings and become actively responsible citizens. Conceptual thinking therefore needs nurturing in environments that present meaningful challenges, offer the resources that can help young people tackle them and recognize the role of emotion in conceptual development. We explain how a relational approach can help young people with the development of identities that can engage them with what society offers. We also show how a relational pedagogy, including the use of digital resources, can sustain students as they tackle the curricular demands of high school, including subject matter knowledge. We point to the potential importance of families in supporting young people in the transition to adulthood and conclude by discussing efforts framed by cultural-historical understandings at supporting this transition for vulnerable young people.
The cultural-historical concepts: relational expertise, common knowledge and relational agency are introduced as central to the work of practitioners who offer a caring (care-full) relational approach to supporting the learning and development of others. Drawing on examples from the field, we examine how the concepts can explain interprofessional collaborations and the prevention of social exclusion, which may frequently include involving parents or carers in focusing on a difficult situation for a child. We consequently discuss and illustrate the concepts in professionals’ work with parents or carers, which aims at mutual support for a child’s social situation of development during transitions. We demonstrate how three concepts can explain how practitioners negotiate their way up a system to find additional support for a child who is in a situation of concern. Our final example is their use in an instrument that assesses the collaborative maturity of teams or networks. The use of the three relational concepts in pedagogy is detailed in Chapter 7.