Epilepsy remains the most common neurologic disorder in childhood and adolescence, with certain epilepsy syndromes such as childhood absence epilepsy (CAE) and juvenile myoclonic epilepsy (JME) being more common in girls. Psychiatric disorders are a common comorbidity in children with epilepsy, especially two behavioral conditions: attention deficit hyperactivity disorder (ADHD) and autism spectrum disorder. In addition, psychosocial issues of stigma, bullying and violence remain potent disruptors of patients’ development at this stage in their lives. Emerging information on how cultural, ethnical and gender diversity may affect care should also be taken into consideration and proactively addressed. As the care of children and adolescents with epilepsy has grown more complex over the past decades, the transition from pediatric to adult care systems needs to become purposeful, such as the medical, psychosocial, educational and vocational needs of young adults with long-term medical conditions are actively

There is an enduring tradition that the first Europeans in the Americas and Hawai’i were perceived as gods, a phenomenon known as “apotheosis” or “the act of turning men into gods.” The tradition is especially strong in relation to two historical figures: the Spanish conquistador Hernán Cortés in Mexico and the British navigator Captain James Cook in Hawai’i. It is, however, by no means confined to these two figures. Furthermore, considerable explanatory power is attributed to this divine identification: indigenous peoples apparently submitted before the demonstration of godly power. In the heyday of European imperialism – the nineteenth century and early twentieth century – this tradition was accepted uncritically by western historians. In the wake of decolonization, from the 1950s and 1960s, increasing interest in non-European perspectives on these early encounters caused historians to call this interpretation into question. Three key issues emerge: what evidence is there that such an apotheosis took place? If it did not, how did the tradition arise? And how did native peoples in fact perceive Europeans?

This chapter contributes a decolonising analysis of tax primarily in the Canadian settler colonial context. I examine the legal constitution of the First Nations Financial Transparency Act in relation to its attempts to reform First Nations’ governance. I demonstrate how the federal government looked to organise a ‘taxpayer’ ethos amongst First Nations citizens through publicising First Nations band salary details and audits. This taxpayer ethos was meant to simultaneously encourage citizens to critique their governments rather than the Canadian federal government, but also to promote private property on reserves. I make a theoretical argument for the necessity of thinking through tax with a decolonising lens that both specifically respects the sovereignty of Indigenous nations and offers a critique of how tax operates to erode that very sovereignty.

The chapter examines the distinctiveness of this composite freedom suit; the unorthodox Afro descendant community that took it to the highest imperial tribunal in Madrid; and the larger historical context that triggered the legal action in the early 1780s. It lays out the significance of the notions of “collective freedom” and “natives of a pueblo” deriving from colonial customary practices and from political, social, and juridical discourses rooted in the Spanish Atlantic world here reworked into novel proposals that challenged the approaching tsunami of slavery expansion in Cuba and the Atlantic world amid the Age of Revolutions, and it even presented a colonial alternative to slave-based plantation and extractive regimes. Linkages are made between the local, colonial, and imperial levels in which legal and political mobilizations unfolded. The chapter also surveys the various historiographies of slavery, race, Afro descendants, Indians, and law, politics and society that intersect in this study and discusses the sources and archives on which the study is based.

Chapter 4 focuses on the meaning and deployment of the novel (and controversial) category of “natives” of a pueblo, widespread throughout the Spanish Atlantic world, to bolster the plaintiffs’ claims to freedom and other rights. The chapter explores both the Spanish and Indigenous traditions that informed the category of nativeness (naturaleza) used in the court briefs and examines their implications for a community of Afro descendant and other racially mixed subjects. The chapter compares the unconventional standing of El Cobre with that of the Indian pueblos of El Caney and Jiguaní in the island’s eastern region to explore the controversial claims to Indian ancestry.

This chapter discusses how historical exchanges with Makassan and other seafaring peoples from beyond the Arafura Sea remain a profound influence on Yolŋu music and culture that endures to this day. We explore how Yolŋu people, through their enduring ceremonial traditions, elaborately integrate song, dance and design elements to recount exchanges with Makassan seafarers, the boats in which they sailed, and the goods they carried. We also discuss how, since the mid-1980s, this autonomous history of Yolŋu exchanges with foreigners has been remembered and continues to inspire new forms of Yolŋu cultural expression that overtly reach out across cultures. Our approach is informed by our long history of researching Yolŋu song in all its forms and working together to document the Yolŋu public ceremonial song tradition known as manikay. Garawirrtja’s expertise is further grounded in his extensive training and practice as a Yolŋu elder and ceremonial singer of the manikay tradition, who maintains hereditary songs that recount Yolŋu contact histories with Makassan and other seafarers.

Anger and frustration over Indigenous ethnic identity fraud have reached fever pitch across social and official media, within cultural and political institutions, and in Indigenous communities. It seems a day doesn’t pass without new revelations of people who have lied about and capitalized on Indigenous identity. Joy Harjo decried such “identity crimes,” saying that “Some claim identity by tenuous family story and some are perpetrating outright fraud.” These arguments go beyond simply outing individuals; increasingly, they call for publishers, universities, and other institutions to do a better job of verifying Indian identity claims. In doing so, however, many are pulling toward a problematic benchmark: enrollment in a federally recognized tribe. I respond to this with a reading of two urban intertribal newspapers – Los Angeles’ Talking Leaf and Boston’s The Circle – published before many tribes achieved their federal recognition. For Native nations that have experienced ethnocide, state detribalization, and rejection of their federal recognition claims, such newspapers have helped tribal members find each other, remember their histories and collectively imagine their futures

Taking seriously other ways that languages can be understood is of significance for both practical and political reasons. If language revival or other applied projects need practical theories of language, they need to be drawn from concerned communities rather than imported from elsewhere. For many Indigenous people, language is deeply connected to land, or what is commonly known as Country in Australia, which can include not only earth, dwellings and place but also water, animals, wind and other beings. Language within these ways of thinking is not connected primarily to people but to land or Country. It is because these ways of thinking about language are so different from a consideration of language as structure, as object, as separate from people and the world, that many language revival projects have struggled. As long as Indigenous languages are thought of in terms of non-Indigenous ontologies, there will always be at best misunderstanding. On these grounds, Indigenous language activists have called for local control of language reclamation projects and the need to decolonize what is meant by language.

Momentum is building for epidemiological research undertaken with, for, and by Indigenous peoples. This work often follows a strength-based approach, emphasising the inherent assets and resilience of Indigenous communities and the role of culture as the foundation of our individual, social, ecological, and spiritual health and well-being. This chapter provides an overview of current discourses around centring Indigenous ontologies (ways of being), epistemologies (ways of knowing), and axiologies (ways of doing), also known as Indigenous ‘lifeworlds’, in epidemiology with a particular focus on Indigenous Australian (Aboriginal and Torres Strait Islander) perspectives. Mayi Kuwayu: The National Study of Aboriginal and Torres Strait Islander Wellbeing is used as a key example illustrating how epidemiological research may be led, owned, and governed by Indigenous peoples to produce rigorous and meaningful data that reflect Indigenous lifeworlds, known as ‘good data’. Applying an Indigenous lens to epidemiological research generates valuable lessons for the development of the DOHaD lifecourse framework and future studies that seek to address holistic determinants of intergenerational health and well-being.

The DOHaD field provides critical evidence for investment in early life, linking environmental exposures during preconception, pregnancy, and infancy with later non-communicable disease risk. Despite the potential of this evidence to positively impact some of our most vulnerable communities, instances where communities are engaged in participatory DOHaD research and knowledge translation processes are limited. This chapter explores the benefits of community-based participatory research approaches and outlines current examples within the DOHaD field. In particular, it focuses on ongoing work within the Cook Islands where DOHaD has informed community-partnered research, scientific and health literacy programmes in schools, and the development of early-life nutrition resources for mothers and families.

This chapter illuminates how camp conceives reading in affective terms. Camp diminishes the intensity of strong affects, such as shame, anxiety, and rage, to make room for relief, laughter, and even sexual interest. In this way, camp protects queer eroticism from being snuffed out by a wide range of phobic discourses. While scholars often oppose camp to sexual desire, I trace different orientations to eroticism that arise in in lesbian, queer of color, and trans camp. As examples, I turn to three camp touchstones, Djuna Barnes’s Ladies Almanack (1928), Tommy Pico’s Junk (2018), and Torrey Peters’ “CisWorld (2019), which each seduce readers into scenes of pleasure. For these writers, campiness does not deflate queer and trans desires but makes them narratable and available for readers. In doing so, these texts demonstrate how camp dreams of a queerer social order, and it shields these fantasies from the suffocating forces of white supremacy and cis-heteronormativity. Making affective scenes for queer fantasy, I conclude, is a powerful if still under-appreciated force of camp’s poetics and politics.

Throughout the history of European colonization of the American continent, which continues today, European visitors and settlers have produced records of their encounters with Indigenous Peoples they regarded as nonheteronormative or queer. Native people have decried the ways such documentation lends itself to cultural misrepresentation and appropriation. In 1990, a group of LGBTIQ+ identified Native American and First Nations people coined the autonym Two-Spirit to insist on Indigenous Peoples’ sovereign rights of self-determination, self-definition, and self-naming. Contemporary Native communities use Two-Spirit as an umbrella term that references gender-expansive Indigenous traditions and identities that exceed colonial logics. This chapter focuses on Two-Spirit/queer Native authors who create literature by and for Two-Spirit people, thus representing the past, present, and imagined future of queer Indigeneity. Proposing that decolonization movements to reclaim queer(ed) Indigenous “gender” traditions and revitalize Indigenous languages are interrelated, this essay reads works by Two-Spirit authors who incorporate Indigenous languages into their writing.

Writing about Oceanic sexualities involves vast travel in space and time to appreciate the striking diversities in Indigenous sexualities across Oceania and to witness how these have transformed over centuries in relation to and resistance against global influences, especially those originating in Euro-American imperialism. Focusing on three different places in the Pacific – Hawai’i, Papua New Guinea and Samoa – this chapter critically considers how Indigenous sexualities have been represented by both foreign and Indigenous scholars and how far contemporary sexualities are seen as a rupture or a persistence from the past. It explores the pervasive conversion to Christianity as part of imperial processes of dispossession and depopulation. It analyses how the valorization of a patriarchal gendered binary and monogamous heterosexuality challenged and transformed prior gender and sexual configurations. It observes the impact of sexually transmitted diseases, from the ‘venereal’, spread by early European explorers, to the twentieth century epidemic of HIV. It critiques the role of foreign observers and anthropologists like Malinowski and Mead in the ‘othering’ of Oceanic sexualities and discusses how Indigenous scholars, artists, and activists have resisted such representations and offered alternative, anti-imperial perspectives.

Drawing on an online ethnographic case study of a young Australian Aboriginal artist, ‘Kambarni’, this study explores how translanguaging can be understood through the negotiation of both playfulness and precarity. When this artist is online in his public social media Instagram account, he constructs his cultural identity artistically and multimodally, often in playful ways, represented through his art - reflecting his personal, social and political lived experiences; his strong alignment to his traditional culture; and his ability to walk with confidence in non-Aboriginal ‘youth’ society. Yet the monolingual ideological precarity is apparent as he rarely uses anything but Standard Australian English (SAE) on his public Instagram account, despite the fact that his Instagram account targets both an Indigenous and non-Aboriginal audience. When he is offline interacting ‘inside’ his own peer group, on the other hand, he employs translanguaging playfully and creatively, using varied resources such as SAE, Aboriginal English and traditional language lexicon. The authors, therefore, argue that translanguaging should be understood from its playfulness aspects within in-group communication, while it might lose its playfulness when it moves beyond its boundary and clashes with other ideological precarities such as judgements, stereotypes and racism against the Aboriginal people.

This chapter begins by addressing settler colonialism and how it has affected and influenced educational practices in the United States. The authors discuss how they define decolonization and ask themselves and their readers if it is truly possible to decolonize schooling in the United States. They offer the concept of a critical settler consciousness to push back against settler colonization, and give multiple examples of communities and schools that are decolonizing their curriculums. The authors emphasize that decolonizing the curriculum is not easy; it is complicated, convoluted, and often unclear. They conclude that there is hope in the communities, parents, and students employing decolonizing practices to educate their young people.

Moralist, libertarian and relativist ethical positions concerning suicide and its prevention are presented in order to clarify premises upon which ethical issues in suicide research may be resolved. Ethical concerns are differentiated from legal considerations and the implications of the vulnerability of suicidology research participants are discussed. Specific issues arise in design, choice of participants, interpretation, diffusion of results and evaluative research. These include: experimental methodologies, obtaining informed consent, deception and disclosure, studying innovative and unproven interventions, special considerations for research with indigenous participants, unknown consequences of participation, rescue criteria, disclosure of information to third parties, research with prisoners and other special populations, risks in publicising results and measuring the value of human life. Digital technologies and artificial intelligence pose new challenges in risk prediction and assuring equity. When specific legal obligations are lacking, ethical premises concerning the acceptability of suicide and obligations to intervene may influence research protocols.