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There are wide variations in the practices of patient involvement in health technology assessment (HTA) in Europe. The field is lacking a consensus on good practices, leading to divergent processes, methods, and evaluation of patient involvement. To identify potential good practice approaches and current gaps, a structured online survey was conducted among HTA stakeholders, including HTA practitioners, patient stakeholders, industry representatives, and others who had experienced patient involvement in HTA.
Methods
The questionnaire was co-created by HTA experts, patient stakeholders, and industry representatives and disseminated between 29 April and 14 September 2022.
Results
Responses (n = 168) were submitted from thirty-two European countries by HTA practitioners (n = 33), patient stakeholders (n = 75), industry stakeholders (n = 42), providers (n = 5), academics (n = 7), and others (n = 6). The responses indicated that “allowing access to treatments that have demonstrated value”is the principle rationale for conducting HTA. In terms of the importance of patient involvement, there was consensus across stakeholder groups that “patients have insights and information [that] no other stakeholder has” and that patient involvement is important “to inform HTA which evidence is most patient-relevant”. Shortcomings were identified in the lack of systematic and transparent processes, an unsatisfactory level of information and guidance, and minimal communication and collaboration.
Conclusions
The diverse stakeholders who responded highlighted the need for improving specific aspects of patient involvement practices, including better guidance and information, a more consistent flow of communication between the HTA body and participating patient stakeholders, and the need to develop and implement a consensus on good practices.
This chapter investigates tax payments and self-making amongst Romanian migrants in London. Vicol demonstrates how taxation is a mode of anchoring oneself in a moral order premised on self-sufficiency. Although the UK’s mainstream media cast Romanian migrants through tropes of welfare dependency, Romanian self-narrations as hard working, taxpaying subjects enabled interlocutors to constitute themselves as good migrants. However, becoming a taxpayer in practice was also an exercise in a particular type of bureaucratic literacy. A host of digital barriers, language deficiencies, and unhelpful bureaucrats drove many to seek out private consultants who made a business of helping their co-nationals decode their obligations to HM Revenue and Customs. Thus, this chapter also explores taxpaying as a technical exercise of making oneself legible through the language of the fiscal authority. Taxation becomes part of the making of the migrant subject. It is about the paradoxical ways in which a digitising state premised on self-reliance prompts affirmations of independence at the level of discourse, while simultaneously generating new networks of dependency in practice.
While there is ample evidence for the efficacy of IPT, confirmed through the results of the efficacy review, on the ground implementation factors are less well understood. We compiled a book on the global reach of IPT by requesting contributions from local authors through word-of-mouth methods. This approach resulted in reports from 31 countries across six continents and 15 diverse populations within the US that spanned the age range and types of usage. In this paper, our aim was to collate and summarize book contributors' descriptions of barriers and facilitators as related to their experiences of implementing IPT across the 31 countries. We conducted a conceptual content analysis and then applied the updated Consolidated Framework of Implementation Research (CFIR) to deductively organize the barriers and facilitators into its five domains. Most found IPT to be relevant and acceptable and described minor variations needed for tailoring to context. National level policies and mental health stigma were highlighted in the outer setting. Availability of specialists and general and mental health infrastructure were considerations relevant to the inner setting. Many sites had successfully implemented IPT through delivery by nonspecialized providers, although provider workload and burnout were common. Clients faced numerous practical challenges in accessing weekly care. Primary strategies to mitigate these challenges were use of telehealth delivery and shortening of the intervention duration. Most programs ensured competency through a combination of didactic training and case supervision. The latter was identified as time-intensive and costly.
This chapter summarizes the maximum sentences available to domestic courts around the world for the perpetration of acts of terrorism. In more than one-quarter of all States this includes the death penalty. The chapter then describes the prosecution of terrorism suspects in selected domestic courts across the Americas, Africa, Asia and the Pacific, and Europe. It considers the reasonableness of the charges laid, the fairness of the trials, and the legitimacy of the sentences imposed upon conviction. Some of those prosecuted for terrorism offences are children or women. The overwhelming majority, though, are men between the ages of eighteen and twenty-five years.
The aim of this chapter is to provide an understanding of the structural constraints and opportunities for the populist radical right (PRR) in Latin America. Unlike Western Europe, material values are still of vital importance in many Latin American countries because of high levels of inequality in the region. This represents a major constraint for the emergence of the PRR, and only some parties have been able to overcome it. The author argues that the growth of the PRR relies on three factors: the appeal of the PRR’s hardline discourses, the mobilization of voters dissatisfied with sexual and reproductive rights and secularization, and a crisis of representation among the traditional parties, who are painted by PRR leaders as a corrupt elite.
Health Technology Assessment (HTA) in Europe has undergone significant evolution, culminating in the adoption of Regulation (EU) 2021/2282 on HTA (HTAR) aimed at fostering sustainable collaboration in HTA at the European Union (EU) level. The EUnetHTA 21 project, a 2-year initiative, was commissioned to address key methodological issues and prepare for the implementation of the HTAR. This commentary documents the outcomes of the EUnetHTA 21 project, focusing on Joint Clinical Assessments (JCAs), while analyzing challenges encountered and lessons learned for future collaboration under the HTAR. The EUnetHTA 21 consortium, comprising thirteen European HTA bodies, developed twenty guidance documents and thirteen templates, refining methods and procedures for joint work in HTA at EU level. Pilot JCAs and Joint Scientific Consultations were conducted to test these materials. Lessons learned from this experience emphasize the importance of inclusive consensus building, effective time and resource management, capacity building, and continuous quality improvement. The project’s realization underscores a collective commitment among HTA bodies to continue to collaborate, now under a legal framework. Recommendations from the project, along with experiences gained from previous European Network for HTA (EUnetHTA) Joint Actions, provide a foundation for developing guidance for EU-HTA under the HTAR. Further proactive efforts at national and central levels are essential to coordinate and ensure a sustainable cooperation. The EUnetHTA 21 experience provides valuable insights for advancing cooperation in HTA under the HTAR, aiming to improve the quality of HTA, avoid duplication, and ultimately enhance patient access to safe and effective health technologies in the EU.
This Element explores the origins, current state, and future of the archaeological study of identity. A floruit of scholarship in the late 20th century introduced identity as a driving force in society, and archaeologists sought expressions of gender, status, ethnicity, and more in the material remains of the past. A robust consensus emerged about identity and its characteristics: dynamic; contested; context driven; performative; polyvalent; intersectional. From the early 2000s identity studies were challenged by new theories of materiality and ontology on the one hand, and by an influx of new data from bioarchaeology on the other. Yet identity studies have proven remarkably enduring. Through European case studies from prehistory to the present, this Element charts identity's evolving place in anthropological archaeology.
West Nile virus (WNV) is a mosquito-borne pathogen that can infect humans, equids, and many bird species, posing a threat to their health. It consists of eight lineages, with Lineage 1 (L1) and Lineage 2 (L2) being the most prevalent and pathogenic. Italy is one of the hardest-hit European nations, with 330 neurological cases and 37 fatalities in humans in the 2021–2022 season, in which the L1 re-emerged after several years of low circulation. We assembled a database comprising all publicly available WNV genomes, along with 31 new Italian strains of WNV L1 sequenced in this study, to trace their evolutionary history using phylodynamics and phylogeography. Our analysis suggests that WNV L1 may have initially entered Italy from Northern Africa around 1985 and indicates a connection between European and Western Mediterranean countries, with two distinct strains circulating within Italy. Furthermore, we identified new genetic mutations that are typical of the Italian strains and that can be tested in future studies to assess their pathogenicity. Our research clarifies the dynamics of WNV L1 in Italy, provides a comprehensive dataset of genome sequences for future reference, and underscores the critical need for continuous and coordinated surveillance efforts between Europe and Africa.
Societies are experiencing deep and intertwined structural changes that may unsettle perceptions European citizens have of their economic and employment security. In turn, such perceptions likely alter people’s political positions. For instance, those worried by labour market competition may prefer greater social protection to compensate for the accrued risk, or prefer more closed economies where external borders provide protection (or perceived protection). We develop expectations about how such distinct reactions can emerge from distinct labour-market risks of globalization, or automation, or migration. We test these expectations using a conjoint experiment in 13 European countries on European-level social policy. Results broadly corroborate our expectations on how different concerns about sources of labour market competition yield support for different features of European-level social policy.
Cartels today are illegal and illegitimate across the globe. Yet until the end of World War II, cartels were legal, ubiquitous, and popular—especially in Europe. How, then, did cartels become bad, if they had been considered a positive force for capitalist stabilization and peace in the first half of the 20th century? That is the question this dissertation poses. By the 1930s, over 1,000 monopolistic agreements regulated nearly half of world trade. International cartels governed the interwar world economy, setting prices and output quotas, dividing world markets, regulating trade flows, and even controlling the transfer of patents across firms and sovereign state borders. I conceptualize this regime as “cartel capitalism.” Most cartels were headquartered in industrial Europe. First, I trace how a surprising consensus in interwar Europe—comprising national governments; international organizations like the League of Nations; industrialists, led by the International Chamber of Commerce; federalists; and even socialists—backed cartels as a panacea to the problems of reconstruction after 1918, namely the quest for peace and stable markets. However, in the wake of 1945, most countries in Western Europe—along with the new supranational European Coal and Steel Community (ECSC, 1951) and European Economic Community (EEC)—started prohibiting cartels. My project illuminates the causes and consequences of this great reversal. Monopoly Menace reveals, for the first time, how Europe’s transnational reckoning with the shocks of the Great Depression, fascism, and total war produced a genuine anticartel revolution that rewrote the rules of the modern European and global economy. Monopoly Menace ends by illuminating how American, British, French, and West German postwar planners designed new national welfare states, the Bretton Woods Order, and the European Union on the neglected foundation of anti-cartel policies.
Caroline Dodds Pennock, Ned Blackhawk, and Esteban Mira Caballos published three paradigm-shifting works in 2023 that flip deeply ingrained narratives of Indigenous Americans’ presence at home in the hemispheric Americas and abroad in Europe. Pennock's book introduces scholarly shifts towards a global Indigenous presence and reframes Europe On Savage Shores where Indigenous travellers arrived on their own accord in largely forgotten encounters; Blackhawk reimagines official United States history which often omits Indigenous peoples by making them its moving force in The Rediscovery of America; and Mira Caballos conversely breaks down stereotypical attitudes toward Indigenous travellers in Spain by evincing their transatlantic journeys to Iberia in El Descubrimiento de Europa (The Discovery of Europe). All three works are mutually reinforcing in their mission to dismantle popular beliefs rooted in imaginative, racist, and antiquated narratives rather than historically verified reality. They are critical for both the academic and public transformation of the history of Indigenous peoples in Northern Europe, Iberia, and the United States. They propose a necessary and well-founded revision of their respective historiographic traditions, all originating from models predicated upon the paradigm of European discovery which these authors successfully turn on its head.
This chapter introduces the topic of the book, namely the interconnections between zero-carbon energy transitions and security, and why this topic is of importance. It creates a setting for the following chapters by explaining the status of the energy transition in Europe, and introducing the academic fields the book draws from: sustainability transition studies, security studies, and studies of policy coherence and integration. The chapter also describes the research methods used and a brief background to the country cases, followed by a summary of the contents of the book.
Edited by
Randall Lesaffer, KU Leuven & Tilburg University,Anne Peters, Max Planck Institute for Comparative Public Law and International Law, Heidelberg
The art and craft of writing history are inherently linked with international-law scholarship. Finding precedents and doctrinal authority and reading the political compromises underpinning institutions are typical purposes. Lawyers, academics and political actors have all been receptive to a historical narrative. The structure and arguments used in international law are closely linked with Western legal culture and the reception of Roman law. This setting is at the same time broader and more restrictive than that of professional academic historians, who developed theoretical standards to distinguish their thought-through production (historia rerum gestarum) from the rendering of brute facts (res gestae) or from a purely literary product. This chapter starts with German and French eighteenth-century visions of the law of nations, before passing to the nineteenth-century passion for history. The ‘men’ of 1873 (Institute of International Law) and twentieth-century evolutions led to the recent boom in scholarship. The ‘turn to history’ in international law not only continues past traditions, but also reflects broader transformations in the social sciences and humanities. Conversely, we witness a contemporary ‘turn to law’ in intellectual, political, cultural and social history, which leads to a stimulating process of cross-fertilisation.
Was war intense and frequent enough in Latin America to cause state formation? How should we evaluate the capability of these states in the nineteenth century? This chapter presents a background of how war formed the colonial state in Latin America and features some cross-regional comparisons between Europe and Latin America which give context to the rest of the book. After showing how warfare in Europe and in the Americas led to the institutionalization of the colonial state, I focus on entire century between the Napoleonic Wars and WWI to show that Latin America faced comparatively frequent and severe warfare during this period. I then show that the territorial effects of warfare were similar in both regions and that the modes of financing war were also comparable and similarly conducive to state building. Put together, these pieces of evidence demonstrate through simple descriptive comparisons that the idea of a relatively peaceful Latin America populated by weak states, although a valid overall characterization of the region in the twentieth century, collapses when our focus is the nineteenth century.
Evidence is scarce in terms of tracking the progress of implementation of mental healthcare plans and policies (MHPPs) in Europe, we aimed to map and analyze the content of MHPPs across the WHO European region.
We collected data from the WHO Mental Health Atlas 2011, 2017 and 2020 to map the development of MHPPs in the region. We contacted 53 key informants from each country in the European region to triangulate the data from WHO Mental Health Atlases and to obtain access to the national mental health plans and policies. We analyzed the content of MHPPs against the four major objectives of the WHO Comprehensive Mental Health Action Plan, and we also focused on the specificity and measurability of their targets.
The number and proportion of countries which have their own MHPPs has increased from 30 (52%) to 43 (91%) between 2011 and 2020. MHPPs are generally in line with the WHO policy, aiming to strengthen care in the community, expand mental health promotion and illness prevention activities, improve quality of care, increase intersectoral collaboration, build workforce and system capacity, and improve adherence to human rights. However, specific, and measurable targets as well as a description of concrete steps, responsibilities and funding sources are mostly missing. They often contain very little information systems, evidence and research, and mostly lack information on evaluating the implementation of MHPPs.
Progress has been made in terms of the development of MHPPs in the WHO Europe. However, MHPPs are often lacking operationalization and appropriate data collection for evaluation. This is then reflected in missing evaluation plans, which in turn leads to lessons not being learned. To enhance the potential for knowledge generation and demonstration of impact, MHPPs should be more specific and contain measurable targets with allocated responsibilities and funding as well as evaluation plans.
The conclusion revisits the book’s key claims and maps new avenues for research on medieval European representations of, and self-definition in relation to, Muslims and Islam. It closes with a brief discussion of the qualified anti-crusade argument, grounded in imperfect ideas of equality, voiced by the French lawyer Honorat Bovet in his widely disseminated Arbre des batailles (1387).
The ways in which minority street-level bureaucrats construe their identities as state representatives and as representatives of minority clients are known to inform their discretionary behavior toward clients, thereby shaping policy outcomes. While existing studies have examined race and ethnicity as shared identities between minority bureaucrats and clients, the role of “migrant” identity has been overlooked. Focusing on the so-called European migration crisis of 2015–2017, this study addresses this gap. Drawing on qualitative interviews with migrant bureaucrats, it examines how being simultaneously a migrant and a migration policy implementer shapes bureaucratic discretion. This article introduces the notion of “migrant representative” and identifies four profiles of migrant bureaucrats, each corresponding to different degrees of identification with the local migration management system and the migrant clients. In doing so, it contributes to the literature on representative bureaucracy and the debate on the linkage between passive and active representation.
We study how the electoral success of radical right populist parties (RRPPs) affects mainstream parties' defense policy positions. The success of RRPPs threatens the credibility of established left-wing parties with coalition and international partners due to substantive overlap between their and RRPPs' defense-skeptical position. We argue that left parties adopt more assertive defense positions to distinguish themselves from RRPPs, thus increasing mainstream consensus on defense policy. Examining 27 European countries between the end of the Cold War and Russia's occupation of Crimea (1990–2013), we test this argument based on a regression discontinuity design around electoral thresholds for obtaining parliamentary seats. We find that, in response to RRPP success, left parties adopt more assertive defense policy positions, whereas center-right parties stand their ground. This study yields evidence for an adversarial response to the radical right, often thought to have lost out to accommodation, and for mechanisms other than electoral incentives, in a highly consequential domain.
This article analyses the scholarly results concerning the social phenomenon of intermarriage. It specifically focuses on the similarities and differences in the latter in Europe, between migrants and host society members, and between national minorities and majorities. The study shows that while intermarriage between migrants and host society members is often seen as a vehicle for bridging social gaps and promoting social cohesion, intermarriages between national minorities and majorities is more likely to lead to erosion of minority identities and cultural traits. Common challenges faced by intermarried couples include resistance from family members and bureaucratic obstacles, with gender dynamics playing a crucial role, particularly in traditional societies where women often bear the brunt of cultural assimilation. Intermarriage also promotes the perspective of the integrative nature of nation-states without requiring intervention by the states themselves. The article underscores the importance of deepening the discourse on intermarriage and focusing on the impact of the latter on both migrant and national minority communities through both quantitative analyses and qualitative approaches. This may improve the understanding of the transformative potential and challenges of these unions.
Several countries are currently revising or have already revised their mental health laws to align with the global movement to reduce the use of coercive care. No government has yet fully implemented the recommendation of the United Nations Convention on the Rights of Persons with Disabilities (UNCRPD) to eliminate the use of coercion in mental healthcare. Consequently, the international field of mental health law and policy is in a degree of flux.
Aims
To describe the rationale, development and protocol for a project that will map and examine how mental health laws, policies and service capacity across European countries relate to the use of coercive measures, including involuntary admissions and treatment, restraints and seclusion. This will help to better understand the current situation and explore future directions of policies regarding coercive care.
Method
The project is being carried out under the purview of the European Cooperation in Science and Technology (COST) action network, entitled FOSTREN (Fostering and Strengthening Approaches to Reducing Coercion in European Mental Health Services). A multidisciplinary group of experts developed a comprehensive survey assessing mental health laws, policies and service frameworks, based on World Health Organization and UNCRPD recommendations. The survey was piloted in three countries, revised and disseminated to 30 FOSTREN country representatives. The survey will provide data for three strands of work on legislation, policies and service-level context. A comprehensive evaluation will be conducted, drawing on findings from all work packages.
Conclusions
The project could inform the development of strategies, interventions and legislation to address gaps and promote compliance with international standards.