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The literature regarding breastfeeding and effects of anti-seizure medication (ASM) exposure via breastmilk has evolved over the past two decades, with mounting evidence that supports breastfeeding for women with epilepsy (WWE) taking ASMs. In this chapter, we provide an overview of the current evidence that supports breastfeeding in infants of mothers taking ASM; safety profile of each ASM and reported adverse effects for various ASMs. Lastly, we review rates and patterns, as well as potential barriers to breastfeeding in WWE and potential intervention to improve breastfeeding practices in WWE.
Introduction: Dementia continues to be a global health concern owed to its increasing prevalence and coupled with physical and psychological burden. It is also the most feared diagnosis amongst older adults which may contribute to underdiagnosis. Pre-assessment counselling (PAC) may reduce fear and increase diagnoses when people with suspected cognitive impairment are empowered with choice and feel in control of their diagnosis journey.
Methods: This study recruited 10 clinicians from an NHS memory clinic in England, UK, and, using semi-structured interviews, sought to understand the mechanisms and effectiveness of PAC.
Results: Using reflective thematic analysis, 3 themes were found. 1. The person with dementia (PwD) is central in their diagnosis journey. 2. Candid conversations build strong therapeutic alliances. 3. Patients are more than their diagnoses.
Discussion: Clinicians emphasized the importance of timely diagnosis for the wellbeing of PwD, while also recognizing the need for patient-centred and collaborative approaches. Additionally, the study highlighted the significance of empowering PwD in decision-making processes, fostering resilience through comprehensive support, and addressing stigma through candid conversations to improve diagnostic outcomes and enhance patient engagement in dementia care. The study indicates that PAC is effective in enabling timely diagnoses, but there is a lack of dedicated appointments in NHS Trusts where PwD are empowered to manage their dementia journey and subsequent care.
Recent progress has been made towards developing automated companions for the elderly. Building on work in the early days of artificial intelligence that showed that computers could deliver non-directive counselling, the possibility arises that computers could be used to provide people with an opportunity for spiritual conversation. Research using Wizard-of-Oz methodology shows that at least some people find it helpful to have spiritual conversations with what they believe to be an avatar, and work using GPT-3 shows that computers can be an acceptable interlocutor in spiritual conversation. The possibility now arises of developing a spiritual companion that would be personalised for a particular individual and become familiar with their spiritual life. This would not, in every way, replace a human spiritual guide, but could provide a resource that at least some people would find valuable and would assist in their spiritual development.
To evaluate the impact of a counselling programme to strengthen the health and nutrition behaviours of caregivers of children under 2 and the sustainability of that impact through reduced intervention intensity one year later.
Design:
The programme trained community- and facility-based health staff to provide nutrition counselling. We conducted an impact evaluation with a modified stepped-wedge design using difference-in-differences analysis to compare indicator changes in an intervention group to a comparison group (midterm survey) and then a full intervention group to a light intervention group (final survey).
Setting:
Batken and Jalal-Abad oblasts, the Kyrgyz Republic, 2020–2023.
Participants:
Caregivers of children under 2 provided 6253 responses in three telephone surveys.
Results:
We observed statistically significant differences between the intervention and comparison groups at midterm for the percentage of children consuming vitamin A-rich foods; an increase in the intervention group (58–62 %) and a decrease in the comparison group (61–57 %). We observed similar results with exclusive breastfeeding (51–55 % in the intervention group and 48–40 % in the comparison group). There were also positive differences in other health and nutrition indicators. With the final survey results, in general, we observed statistically significant differences indicating a bigger change in full intervention areas compared to light intervention areas. We observed small negative changes in many indicators in light intervention areas.
Conclusions:
This evaluation highlights the importance of continued support for local interventions, particularly counselling programmes, to foster optimal nutrition behaviours.
Policies for recipients of basic income support for jobseekers in Germany focus on activation and quick labour market integration. Yet, the majority of benefit recipients report severe health impairments. Against this background, the article investigates implications of health impairments for benefit recipients’ jobcentre relationship and employment opportunities. The analyses show that 63 per cent of non-employed benefit recipients report health restrictions on their employment capabilities, 51 per cent report severe health impairments, and 25 per cent that they cannot work at all. The most frequent types of health impairments are musculoskeletal and mental health impairments. Health impairments significantly reduce entry rates into socially insured employment, but do not seem to inhibit taking up uninsured minijobs. Counselling frequency increases job entry rates for benefit recipients without health impairments in the short-term. For those with health impairments, no short-term effects are found over a one-year follow-up period. Policy responses could include a more explicit acknowledgement of health impairments as a central issue for benefit recipients. Greater investments in rehabilitation and subsidised employment could be part of a strategy to improve opportunities for benefit recipients with health impairments to find better-quality (part-time) employment instead of uninsured minijobs. The analyses are based on linked longitudinal PASS survey and administrative data.
When and how forcefully must we intervene to save a life, and when should we respect the will to die? This book presents alternative ethical paradigms to understand contemporary challenges in suicide research, prevention, practices, and policies, including challenges in the expanding legalization of euthanasia and assisted suicide ('medical assistance in dying'). Drawing on case studies and philosophical approaches, analysis focuses on decision-making when we are faced with questions about obligations to help and intervene in suicidal situations. Chapters cover moral dilemmas in rescue policies, ethical challenges in suicide research, civil and legal considerations, and similarities and differences with accessing medical assistance in dying. Discussion is grounded in contemporary debates, addressing important issues such as if we should continue to hospitalize people to protect them from self-harm, or control access to 'dangerous' suicide content online? This book is unique in its focus on the practical concerns of mental health professionals, helplines, researchers, policy makers, and programme planners who are faced with ethical challenges in suicidology and suicide prevention.
This study assesses change in caregiver practices after integrating responsive care and early learning (RCEL) in nutrition and health services and community platforms in northern Ghana.
Design:
We trained health facility workers and community health volunteers to deliver RCEL counselling to caregivers of children under 2 years of age through existing health facilities and community groups. We assessed changes in caregivers’ RCEL practices before and after the intervention with a household questionnaire and caregiver–child observations.
Setting:
The study took place in Sagnarigu, Gushegu, Wa East and Mamprugu-Moagduri districts from April 2022 to March 2023. Study sites included seventy-nine child welfare clinics (CWC) at Ghana Health Service facilities and eighty village savings and loan association (VSLA) groups.
Participants:
We enrolled 211 adult caregivers in the study sites who had children 0–23 months at baseline and were enrolled in a CWC or a VSLA.
Results:
We observed improvements in RCEL and infant and young child feeding practices, opportunities for early learning (e.g. access to books and playthings) in the home environment and reductions in parental stress.
Conclusions:
This study demonstrates the effectiveness of integrating RCEL content into existing nutrition and health services. The findings can be used to develop, enhance and advocate for policies integrating RCEL into existing services and platforms in Ghana. Future research may explore the relationship between positive changes in caregiver behaviour and improvements in child development outcomes as well as strategies for enhancing paternal engagement in care practices, improving child supervision and ensuring an enabling environment.
A 29-year-old G2P1 at seven weeks’ gestation is referred to your tertiary center for consultation and prenatal care. Obstetric history is significant for fetal growth restriction (FGR) requiring preterm delivery at 33 weeks’ gestation. Her son’s birthweight was 1400 g. The patient’s prenatal care and delivery were at another center, and her medical chart is unavailable at the time of initial consultation.
A healthy 25-year-old primigravida with a spontaneous singleton pregnancy at 32+3 weeks’ gestation presents for a routine prenatal visit accompanied by her husband. Her primary care provider just left on a three-month sabbatical. Pregnancy dating was confirmed by first-trimester sonography. All maternal-fetal aspects of routine prenatal care have been unremarkable, and the patient has not experienced any pregnancy complications. There is no history of mental health disorders, and the patient practices a healthy lifestyle.
You are covering an obstetrics clinic for your colleague who left for vacation. A 30-year-old G2P1 at 37+2 weeks’ gestation by first-trimester sonogram presents for a prenatal visit. Screening tests revealed a male fetus with a low risk of aneuploidy and a normal second-trimester morphology sonogram. Maternal investigations were unremarkable in the first trimester. Your colleague’s note from a second-trimester prenatal visit details the counseling provided with regard to prior shoulder dystocia; a recent note indicates the intent to review management during this visit.
There is substantial variation in patient symptoms following psychological therapy for depression and anxiety. However, reliance on endpoint outcomes ignores additional interindividual variation during therapy. Knowing a patient's likely symptom trajectories could guide clinical decisions. We aimed to identify latent classes of patients with similar symptom trajectories over the course of psychological therapy and explore associations between baseline variables and trajectory class.
Methods
Patients received high-intensity psychological treatment for common mental health problems at National Health Service Improving Access to Psychological Therapies services in South London (N = 16 258). To identify trajectories, we performed growth mixture modelling of depression and anxiety symptoms over 11 sessions. We then ran multinomial regressions to identify baseline variables associated with trajectory class membership.
Results
Trajectories of depression and anxiety symptoms were highly similar and best modelled by four classes. Three classes started with moderate-severe symptoms and showed (1) no change, (2) gradual improvement, and (3) fast improvement. A final class (4) showed initially mild symptoms and minimal improvement. Within the moderate-severe baseline symptom classes, patients in the two showing improvement as opposed to no change tended not to be prescribed psychotropic medication or report a disability and were in employment. Patients showing fast improvement additionally reported lower baseline functional impairment on average.
Conclusions
Multiple trajectory classes of depression and anxiety symptoms were associated with baseline characteristics. Identifying the most likely trajectory for a patient at the start of treatment could inform decisions about the suitability and continuation of therapy, ultimately improving patient outcomes.
Survivors need support when preparing and submitting redress applications; they need help through (often protracted) assessment processes, and assistance when they receive payments. Good support is necessary to survivors and to the effectiveness of any redress programme. The chapter first explores how local community agencies support survivors. This investigation encompasses the roles of survivors and offenders in providing support. I then look at how to provide survivors with professional services. While survivors should have real choices where they get support, this chapter stresses the advantages of providing holistic support through local community agencies.
“Patient support” is a concept far broader than the traditional offer of a phone number for a counselor and handing her a pamphlet. It encompasses optimal clinical management, as well as an organizational structure for the whole service to optimize patient experience. We first summarize supporting women over 40 during the COVID pandemic, followed by providing key steps of an individualized clinical management strategy, and the requirements of patient support structures. However, unlike previous publications, this chapter does not end by simply outlining what is desirable. It proceeds to a number of practical steps that fertility services can follow, using the framework of “patient experience architecture” to build suitable structured pathways. Furthermore, it explores the path of digital transformation in an effort to reduce cost and improve consistency delivering core professional values in every interaction. At the end of the chapter there is a short list of useful reading.
To better understand parents’ accounts of their prenatal and postnatal experience after prenatal diagnosis of CHD – particularly emotional processing and coping mechanisms – to identify strategies to improve support.
Methods:
This single-centre, longitudinal qualitative study included pregnant mothers and their support persons seen in Fetal Cardiology Clinic at Vanderbilt Children’s Hospital from May through August 2019 for probable complex CHD. Twenty-seven individuals from 17 families participated in 62 phone interviews during pregnancy and postpartum: 27 conducted after the initial prenatal cardiology consultation, 15 after a follow-up prenatal visit, and 20 after birth. Applied thematic analysis approach was used to code and analyse transcribed interviews. Coding and codebook revisions occurred iteratively; intercoder reliability was >80%.
Results:
Patients included mothers (16 [59%]), fathers (8 [30%]), and other support persons (3 [11%]). Initial fetal diagnoses included a range of moderate to severe CHD. Prenatally, parents sought to maintain hope while understanding the diagnosis; planning for the future rather than focusing on day-to-day was more common if prognoses were better. Postnatally, with confirmation of prenatal diagnoses, parents’ sense of control expanded, and they desired more active engagement in clinical decision making.
Conclusions:
To enhance effective communication and support, understanding how parents conceptualise hope in relation to diagnosis and how that may evolve over time is critical. Expectant parents whose child has a significant risk of mortality may demonstrate hope by focusing on positivity. As prognostic uncertainty diminishes postpartum, the parental role on the team may shift, requiring clinicians to provide different support.
Racism is a pervasive problem in Western society, leading to mental and physical unwellness in people from racialized groups. Psychology began as a racist discipline and still is. As such, most clinical training and curricula do not operate from an anti-racist framework. Although most therapists have seen clients with stress and trauma due to racialization, very few were taught how to assess or treat it. Furthermore, clinicians and researchers can cause harm when they rely on White-dominant cultural norms that do not serve people of colour well. This paper discusses how clinicians can recognize and embrace an anti-racism approach in practice, research, and life in general. Included is a discussion of recent research on racial microaggressions, the difference between being a racial justice ally and racial justice saviour, and new research on what racial allyship entails. Ultimately, the anti-racist clinician will achieve a level of competency that promotes safety and prevents harm coming to those they desire to help, and they will be an active force in bringing change to those systems that propagate emotional harm in the form of racism.
Key learning aims
(1) Knowledge of how racism manifests in therapy, psychology and society.
(2) Understanding the difference between racial justice allyship versus saviourship.
(3) Increased awareness of microaggressions in therapy.
(4) Appreciation of the importance of combatting systemic racism.
The COVID-19 pandemic has led to a significant increase in demand for mental health services for young people. This demand comes on top of a preexisting surge in mental health presentations for our youth, and it places extraordinary demand on support services and the professionals who deliver them. Concurrently, it is recognised that engaging and working with young people and their mental health has its own unique challenges, and that many young people find direct ‘talk-based’ therapies confronting. This article examines the use of a model of group work practice combining the benefits of rhythmic music with reflective discussions as a response to the dual challenges of workplace burnout and client engagement. It reflects on the important role music has to play in young lives and how this can be extended into therapy in a fun and uplifting manner. It draws attention to the long history of rhythmic music within traditional healing practices and the emerging scientific evidence supporting this approach.
Vulvodynia is a persistent, idiopathic, and multifactorial vulval pain. It presents a challenge to healthcare providers, mainly because it is a complex syndrome that requires interdisciplinary skills, especially in the neurobiological and algological fields, to avoid incorrect pathogenetic interpretations, inaccurate diagnosis and inadequate treatment.
From a neurobiological perspective, vulvodynia is a dysfunctional vulval pain caused by abnormal function of the nervous system itself, not related to a specific vulval disorder responsible for inflammatory pain, or a neural lesion responsible for neuropathic pain.
Provoked vestibulodynia is the most prevalent subtype of vulvodynia, followed by spontaneous generalized vulvodynia. The primary diagnostic goal is to determine whether the woman suffers from vulvodynia as dysfunctional pain opposed to inflammatory or neuropathic pain.
Treatment of vulvodynia requires an individually tailored and multimodal therapeutic approach, that includes counselling, psychological therapy, medical treatment, and physiotherapy. Surgery can be proposed only as a last resort in provoked vestibulodynia.
Parents who receive a diagnosis of a severe, life-threatening CHD for their foetus or neonate face a complex and stressful decision between termination, palliative care, or surgery. Understanding how parents make this initial treatment decision is critical for developing interventions to improve counselling for these families.
Methods:
We conducted focus groups in four academic medical centres across the United States of America with a purposive sample of parents who chose termination, palliative care, or surgery for their foetus or neonate diagnosed with severe CHD.
Results:
Ten focus groups were conducted with 56 parents (Mage = 34 years; 80% female; 89% White). Results were constructed around three domains: decision-making approaches; values and beliefs; and decision-making challenges. Parents discussed varying approaches to making the decision, ranging from relying on their “gut feeling” to desiring statistics and probabilities. Religious and spiritual beliefs often guided the decision to not terminate the pregnancy. Quality of life was an important consideration, including how each option would impact the child (e.g., pain or discomfort, cognitive and physical abilities) and their family (e.g., care for other children, marriage, and career). Parents reported inconsistent communication of options by clinicians and challenges related to time constraints for making a decision and difficulty in processing information when distressed.
Conclusion:
This study offers important insights that can be used to design interventions to improve decision support and family-centred care in clinical practice.
Genetic counselling has been defined as the process of helping people “understand and adapt to medical, psychosocial, and familial aspects of genetic conditions.” It can also help patients and families deal with stigma and understand the significance of possible genetic findings. Psychiatric genetic counselling (PGC) is an emerging field aimed to help people with a personal or family history of psychiatric illnesses such as schizophrenia, bipolar disorder, or neuropsychiatric conditions, to understand genetic etiological mechanisms as a critical component. Counselling strategies are used to identify and adapt to psychological and familial consequences of the conditions and to reduce stigma surrounding the psychiatric illness. A recent survey showed that PGC is still not routinely offered and usually only discussed at the initiative of the patient, e.g. if they ask about the possibility of “hereditary" illness, or if a caregiver during a session for another indication, identifies the family history. If a monogenetic or chromosomal cause is identified, the genetic counselling follows a more traditional path, but if, on the other hand, the cause is complex, the counselling will not be as clearcut. It will then focus on explaining risk for disease with quite uncertain riskscores as no causative genetic change is identified. Although genetic testing most often cannot be offered and individual risk scores based on genetic markers cannot be given, there is still great value for patients and their relatives in PGC. Studies have shown that the effect of PGC is an increase of empowerment and a reduction of stigma.
In a previous feasibility trial, we found that transdiagnostic cognitive behavioural therapy (T-CBT) showed promising results in improving emotional disorders in adults from Saudi Arabia. The primary aim of this study was to replicate these findings and compare T-CBT results with results for counselling sessions. The overall sample consisted of 276 patients (175 in the T-CBT group and 101 in the counselling group). Of the overall sample, 110 patients (39.9%) completed the treatment plan, and 166 (60.1%) disengaged from treatment. The pre- and post-assessments of the clients who completed the treatment showed large effect sizes for almost all outcome measures for both the T-CBT and counselling groups. For patients who decided to disengage from therapy, T-CBT had medium effect sizes for all three measures (depression, anxiety and function), while counselling sessions had medium effect size for the anxiety measure only. This study provides additional evidence that T-CBT is suitable for patients from Saudi Arabia with emotional disorders. The study also provides information regarding when and why T-CBT or counselling was applied in a real clinical setting. Implications and recommendations are discussed.
Key learning aims
(1) To confirm a previous feasibility trial on the effect of T-CBT in Saudi Arabia.
(2) To explore the effect of T-CBT compared with counselling in a real clinical setting.
(3) To identify variables related to the choice of interventions.